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Well today was my first day on my own since dad went, everyone gone to work,just me alone in the house,i might aswell been sitting on the moon,i know i could have phoned hubby or kids even just for a chat but didn't want to worry them,hubby was worried about leaving me as it was,and my two best mates who i know i could ring and they would come at the drop of a hat,but i knew this day had to come and i had to cope,thought i was doing so well maybe I'm not as strong as i thought i was only time...
I posted couple of weeks back that Alan had a biopsey done, they have now comfirmed that his Lymphoma has come back .
We are getting a call from hosp on fri as there is a case meeting tomorrow and we should then know more we think he is to have radiotherapy .
And we were getting nearer to that 2yrs of check and getting signed off .
Hopefully will go away at weekend go and see my mum .
Nanaboo
Hello everyone, I just wanted to pick your brains. My husband has follicular lymphoma and has just finished 2 year maintenance therapy of Rituxamab and had scans on Friday and results due Monday 24th. However after 3 years of dealing with this we (both of us) have come to the conclusion he is not dealing with this so can anybody recommend counsellors? I am going to check with the hospital in London on monday and ask their advice too but I am not enough now, I feel I cant reach him I think he needs...
Saw my oncologist yesterday and starting chemo next week which I am terrified about. Have to decide today whether to try the cold cap or not and am really confused. How life changes the only cap I've ever had on my head was when I used to have hilights done, those were the days!
Hello all
Sorry I haven't been around for a while. It's been beyond difficult here at times.
Since I last wrote, my husband has had another stent fitted as the first had slipped into the stomach, which made eating virtually impossible. He had 3 units of blood transfused on new years eve due to severe anaemia again. His levels were down to 8 and a healthy male of his age - 45 - should read between 14 and 18.
He has lost 2 and a half stones in weight since in recent months due to disease...
Hi there for all who knows me just to let you know mum is in hospital and we just got told she only has days left its been quick she was taken in on sunday they thought it wazs fluid but it turns out its a chest infection but she cant fight it no more i will keep you all posted
jean
today is the 5th day after my first chemo and i feel rough today somehow bit sick and just weird and very tired although im not sleeping at all well seem to be hyper during the night though think im over the worst for now well hope i am ........anyways apart from the really bad sore arm i had for 2 days and the awful tiredness that i felt on friday but its the spaced out feeling i find so difficult to put up with now is this normal ??....cos i dont know whats normal and whats not normal had the hot...
The funerals tommorow and to be honest im dreading it, it always seems so final after a funeral and alot of people think that the grieving should finish and we should get on with our lives. Thats not the case for a lot of people on here and certainly not for me, its been the hardest week ever having to adjust to life without pop in it and even though ive been busy organising things the thought of whats to come after is never far from my mind. My days were spent looking after my pop and giving him...
I wish it was me and not my mum that had to go through this bloody horrible OC. I am so much better equipped.....
The week is now over, and after 300 miles and £7.50 in parking charges, (not to mention the loss of income for my husband), I'm glad to say I can feel, and others can see the difference in the size of my tummy. I was obviously building up fluid again, and after 3 days it had gone down sufficiently for me to get into my ordinary sized jeans, instead of baggy trackies. It makes you feel better if you can put on something decent. This chemo hasn't affected me too much yet, bit tired, but able...
