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Hi all,
Having seen my GP last Tuesday I have finally got my urgent referral to a gynaecological consultant. GP agrees my symptoms more than warrant this. I am now hoping to see someone within 2 weeks so fingers crossed.
My symptoms are really worrying me - I still have UTI symptoms despite finishing the course of antibiotics. That's two infections treated with quick recurrence. Also, I am now experiencing increasing pain in my lower back, more nausea and less ability to eat without feeling ill...
Well its the day before Dads funeral and the panic has set in!!!!
I've tried to keep busy organising things cleaning the house as if the queen is coming and nothing has helped this feeling of panic and dread that i'm having to have to say goodbye to my Dad, i really dont want tomorrow to come yet i know it will and i know with the help of family and friends i will survive it but i cant get over this feeling, i just dont know where i'm going the find the strength from !!!!!!!!!!
The Probability Theory I wish I had never heard of it!
I hadn't until thursday morning wqhen the postman dropped a big fat envelope through my letterbox.
I was happily chugging along with my life. Relieved that my journey was coming to an end ( I had just been for my pre-op assessment for my stoma reversal) then Wham Splat Bam. I get blown way with what the professor said.
That if my bowel hadn't have burst then I could have considered myself cured, because it had burst I have to consider...
Well when i first started chemo my goal was to survive the epirubicin, on thursday just gone i finally had my last round and i am SOOOOO happy to announce that i will never have to go through scalp cooling again!! For anyone considering scalp cooling i can honestly say that as painfull as it was, and very time consuming ive actually had fantastic results and still have a full head of hair. I will be taking pictures and sending them to oncology for other people to look at!! I now have my 3 week break...
A few days have passed after the funeral and i thought i would be getting my head around things abit better but this isnt happening. Everyone seems to be getting on with life in general but my days seem so long and the nights even longer. I know i should be dealing with things better for the sake of my family but i feel like now the funeral is over people seem to have fogot about pop and all i want to do is talk about him.
I get so angry towards my husband when he laughs with someone and i know...
Had scan results yesterday and good news! There are now less lymph nodes infected with cancer cells and those that are still there are shrinking.
My lovely consultant is very pleased with me and I will continue to take Capcitamine (or however you spell it!) for another 4 cycles and continuing on Herceptin. Not too many side effects, just very dry and sore hands and feet and the inevitable fatigue.
Feeling much more positive.
Fingers crossed the Chemo keeps working!
I set my notifications up to email if I got a response to my blog, not expecting anything at all. I was sitting in a meeting and my blackberry buzzed all over the place. I was amazed, not annoyed, just amazed.
Today has been a day of it, everyone has said lately that I've been quiet but apparently more so today!
I asked for time off for 2 days next week for a funeral (it's about 100 miles away) of a friend of mine and have been told no because of the project I'm working on. I can't remember...
steve passed away 6/12/10 sudden but peacefully he only had one lot of chemo it had not worked, he refused anymore treatment. his liver was badly swollen they thought it had spread tot he stomach never got a chance to find out. he lasted eight weeks after being diagnosed at peace now
I have just had my pre-op assessment for my stoma reversal on the 28th Jan, next friday.
All is well and I long for the day to come. It will be the end of my journey I hoped!
I came home to a very large envelope from my solicitor. It was statements from 2 specialist professors in the field of surgery and oncology. I already have one from a specialist radiographer.
I have started a complaint against my local PCT accusing them of neglect, dereliction of care and misdiagnosis.
The 3 professors...
Well I've been on this site for just over a week. I thought I would start this, because sometimes you just need to talk to yourself - I do it all the time!!
This page and chat room is amazing, everyone here is just so nice and I am amazed at how welcoming people are. It's so sad to see how many people are hurting from this disease as either a patient or a carer.
So, where do I start about me?
