more bad news

1 minute read time.

Hello all

Sorry I haven't been around for a while. It's been beyond difficult here at times.

Since I last wrote, my husband has had another stent fitted as the first had slipped into the stomach, which made eating virtually impossible. He had 3 units of blood transfused on new years eve due to severe anaemia again. His levels were down to 8 and a healthy male of his age - 45 - should read between 14 and 18.

He has lost 2 and a half stones in weight since in recent months due to disease and such obstructions and sickness.

He has fought so hard to gain strength and it has been a hard battle. A meeting with the team at the Marsden this afternoon told of an upward trend in tumour markers - 300,000 four weeks ago, 1,000,000 two weeks ago and todays test they estimate at being 1,500,000 (results tomorrow).

Having been told to expect long months in November it was somewhat of a shock to be told today that time should be measured in weeks. Food is now secondary to the disease and we should work on the premis of making things comfortable.

The disease in the liver is very apparent, not only through difficulty with digestion and absorption, but also visually with yellowing of eyes and skin.

I love my husband deeply and wish I could take it all away so he can see his children grow but I can't. He's tired now and feels strangely relieved that he no longer has to fight this nasty battle.

I pray that his last few weeks are as peacful and relaxed as possible under such sadness. x

Anonymous
  • FormerMember
    FormerMember

    Oh I am so sorry cookiemeg, there are no words that I can type to comfort you I know but please know that the Mac family are here to listen and support in any way we can.

    I am a similar age with three young children so I can only imagine the effect this has on you and your family. You could buy some cards for your childrens future for your husband to write on or dictate to you ie their special birthdays etc so he can be there in a small way in the future with some words of guidance and love.

    I join you in your prayer that your husband does not suffer and that you have the strength to bear the times coming

    If ever you need to talk, try popping in to the chat room, there are so many lovely people there to share experience and support each other, patients and carers, people who have been through what you are going through. Its sometimes easier to open up to people less close.

    Take care

    Vikki xxx

  • FormerMember
    FormerMember

    My thoughts and prayers are with. Stay strong its hard I know.

    Love Julie xx

  • FormerMember
    FormerMember

    Hi Meg,

    My deepest sympathy goes out to you at this time.

    Your going to have to be strong over the coming weeks. I send you my Strength and support.

    Take care and be safe Big Hugs Love Sarsfield.xx

  • FormerMember
    FormerMember

    My heart goes out to you i have just lost my husband aged 55 to oesphageal cancer with secondary cancer on the adrenal gland finally a tumor behind his eye turned out to be brain mets,its awful to see them suffering so told him to let go(he wanted to see the twins 10th birthday in December but not to be we lost him in November)Be strong xx