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Having been diagnosed with advanced prostate cancer at the beginning of March last year at the age of 64, I went through the usual tests of biopsey, ct , mri and bone scans, and was immediatley put onto hormone therapy.( Decapeptyl). I was then asked if I would like to take part in the stampede drug trial. I had a gleason scale of 8 and was told that I had mets to the pelvis.
As my wife and I were in total shock at the time, we agreed as anything that might make this horrible disease go away had...
So I've been to see the oncologist today, very nice lady doctor with a work experience girl in tow !! and she talks about what treatment i'm going to have - and yes it's what i expected 3 rounds of FEC and 3 rounds of Taxotere, then herceptin and lanezole BUT then she said and radiotherapy !!!!!! what !!thats the one treatment Sue the breast care nurse said i wasn't going to have and i have a piece of paper from the MDT meeting that doesn't have radiotherapy ticked as a treatment...
You've just been told you have cancer.The rushing sound you hear isn't running water its your life on fast forward. Then comes the double wammy; you have a cancer noone has heard of let alone come across. There is not a lot of info and what there is is doom and gloom. Rare cancers also act differently in as much as they can transcend 2 or 3 types. In my case treatment is also rare. I was diagnosed 10 years ago and have seen many changes. I've also met many interesting people. You also get...
I posted a few days ago, but no-one has commented or left a message.
I know my form of luekaemia is very rare. And most of the 300 of us with CMML in the UK are male and over 70. Maybe they aren't on this site? I'm 53 and female. I kept my diagnosis to myself for a long time. I didn't see any point in worrying other people when there was nothing to be done.
But I would so love to be able to talk to someone with the same disease - or even someone else. There is currently no treatment...
Good Day!
I rang the breast care nurse today because I was unsure about when to go in with a seroma. She said when it was uncomfortable. I said it's not, but then it may be my perception of how things are going anyway. She said to come up to have a look (I was in town anyway) so I went and she drained 300mls - there is more, but she couldn't find the right pocket and as I am not uncomfortable we left it.
So here come the really good news:
She cheated and looked up my sentinel node biopsy...
TO WAKE UP IN THE MORNING TO BEAUTIFUL SHINING SUN
THAT LOVELY WARM FEELING THAT A NEW DAY HAS BEGUN
WE CAN WAKE UP WITH A SMILE INSTEAD OF FEELING GRAY
IT SOMEHOW SEEMS TO MANAGE TO BRIGHTEN UP OUR DAY
REGUARDLESS OF THE WORRY PEOPLE HAVE LOCKED INSIDE
THEY SOMEHOW SEEM TO SMILE AND ENJOY THE YELLOW SKY
HAPPY AND SMILING FACES CAN BE SEEN FOR MILES AROUND
AS CHILDREN CAN NOW ESCAPE FROM BEING HOUSE BOUND
TO LOOK OUT OF THE WINDOW AND SEE THE CHILDREN PLAY
TO HEAR THEM HAPPY AND GIGGLING SEEMS TO...
Dad had been coughing up blood, and was getting pains in his chest, so i rang for paramedics, and he got admitted, that night my life changed . . .
He was diagnosed with lung cancer, and after tests, we were told it has spread to his liver and lymph nodes, and even with chemo he has less than a year!
The one person, who has been through everything with me is slowly dying infront of me.
I dont have close family around me, so have to deal with this on my own, aswell as work, and care for my nephew...
Feeling back to normal now after bad chest infection.Eating so much better and at last gaining (ounces!!) Have much more endurance now am 15 months post op so chuffed about that now I dont need to sleep as much daytimes! odd nap does me these days.Still enjoying life after retiring but of course rekindled my singing career so busy with that and at minute am restructuring my act,good publicity photos,brochures which means my new management will channel me into larger and better venues.so with several...
Well, here we are, day 9 of chemo No.2 and so far no hospital this time. Apart from that the journey this time has been almost identical to the first one. No problems for the first few days ( apart from a fire alarm in the chemo dept. during treatment resulting in a mass evacuation ). Last Tuesday and part of Wednesday I had terrible depression but with Val's help got over that. Went to the mobility store in Bluewater on Wednesday to borrow a mobility scooter until my new one is in hopefully tomorrow...
