CMML

  • Feeling very isolated

    FormerMember
    FormerMember

    I posted a few days ago, but no-one has commented or left a message.

    I know my form of luekaemia is very rare. And most of the 300 of us with CMML in the UK are male and over 70. Maybe they aren't on this site? I'm 53 and female. I kept my diagnosis to myself for a long time. I didn't see any point in worrying other people when there was nothing to be done.

    But I would so love to be able to talk to…

  • Bad couple of weeks

    FormerMember
    FormerMember

    I was diagnosed with CMML quite a while ago. My lovely haematologist, who I've been seeing since 2005, had warned it looked like things were pointing towards CMML but I can't honestly say I was that worried.

    A bone marrow test was excrutiating. (It's worth knowing you can ask to be sedated.) According to various hospitals I have a high pain threshold. I thought I'd screamed the place down, but my boyfriend…