You've just been told you have cancer.The rushing sound you hear isn't running water its your life on fast forward. Then comes the double wammy; you have a cancer noone has heard of let alone come across. There is not a lot of info and what there is is doom and gloom. Rare cancers also act differently in as much as they can transcend 2 or 3  types. In my case treatment is also rare. I was diagnosed 10 years ago and have seen many changes. I've also met many interesting people. You also get to travel to many different hospitals so get to see Britain.

So you have a rare cancer but add us altogether and we are a common cancer.

Enjoy the now, it makes memories for the past and the future is here before you know it.