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My mum had a Whipple's operation May 1st 2012 at Guildford, although lives in Littlehampton, West Sussex so we have a 3-4 hour journey each time we visit!She reocvered well after having to wait nearly 3 months for the jaundice and infections to setle. she also had C diff which delayed the surgery.She went on the BILCAP trial to get chemo post op but got selected to be on the "obsevation only" option! of course the cancer recurred in November 2012, and started Cis/Gem chemo in February at Guildford...
My sixth and last FEC chemo was on the 22nd April. The side effects hit me harder again this time, but here I am nearly two weeks on and I'm slowly recovering and I am feeling better each day. The sun is shining and that always makes you feel better!
The hypnotherapy sessions to tackle my needle phobia, particularly with the cannular insertion, definitely helped and I would recommed it to anyone with the same fear. Having a reflexologist there too whilst the nurse is inserting the cannular helped...
Well back home form hospital with everything over and a big bag of pills to pop. Everything went well and I feel fine, maybe a wee bit light headed but only slightly. This is what happened.
Once settled in and bloods take, the cannula fitted i had priton and hydrocortisone injected the saline drip for around half an hour, then the first bag of ritixumab 95mg to be precise. Then tablet form fluradabine and chlorambusal along with anti nausea tablets aciclover and some others I can...
Mam passed away early on Monday morning. My sister and I were with her. Dad had just left the room when she passed.
He looks so lost without her. Hopefully soon they'll be together again.
My Dad had his check up with the consultant last Thursday - he has had 2 out of 4 chemo sessions so it was to discuss how he was getting on. Well the last time we saw this consultant he had told my Dad that without treatment he would only have 6 months to live. So in the waiting room my Dad looked SO scared. He had no colour in his face...his eyes looked sad...and he was shaking. It took everything I had to not sob my heart out...I was scared but also seeing my Dad so scared just broke...
So Monday went quite well, C dug 2 holes while the sun was out for dropping a couple of tayberry bushes in. My back was gyppy so he volunteered. Should have said it would wait but he wanted to do something. An hour of warm up later and all was well again.
Eating still an effort but he's persevering. He'll never need weightwatchers.
Monday night: 4 days after the Oxy drip and anti squit pill needed.
The anti sick pill went to work with him but fortunately wasn't needed. Phew. Saves a phone...
How does he do it? I seem to have lost almost 2 years and can not find the answers anywhere!!
Since diagnosis to now we have had 1 nightmare after another, hence not realising that the weeks and months have passed us by.
End of September 2011 was biopsy time, October was Neck disection and tonsil removal.
Just to run alongside this we were moving our Business to new premises. Not a good idea!
Anyhow we managed by the skin of our teeth, dearly beloved decided that all was not going to go as...
It's been a while since I last posted but there is a reason for this. It has been a struggle.......
Since katie had her operation to debulk her bowel and remove the cysts on her overies she has struggled to settle down. She has been left with a Stoma and has struggled to come to terms with it, as have I. She has been in pain and discomfort and has had horrendous insomnia. I have asked her to go counselling do deal with it all but she is just not up for it. We are too young for all this, Katie...
