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steve passed away 6/12/10 sudden but peacefully he only had one lot of chemo it had not worked, he refused anymore treatment. his liver was badly swollen they thought it had spread tot he stomach never got a chance to find out. he lasted eight weeks after being diagnosed at peace now
I have just had my pre-op assessment for my stoma reversal on the 28th Jan, next friday.
All is well and I long for the day to come. It will be the end of my journey I hoped!
I came home to a very large envelope from my solicitor. It was statements from 2 specialist professors in the field of surgery and oncology. I already have one from a specialist radiographer.
I have started a complaint against my local PCT accusing them of neglect, dereliction of care and misdiagnosis.
The 3 professors...
Well I've been on this site for just over a week. I thought I would start this, because sometimes you just need to talk to yourself - I do it all the time!!
This page and chat room is amazing, everyone here is just so nice and I am amazed at how welcoming people are. It's so sad to see how many people are hurting from this disease as either a patient or a carer.
So, where do I start about me?
Well today was my first day on my own since dad went, everyone gone to work,just me alone in the house,i might aswell been sitting on the moon,i know i could have phoned hubby or kids even just for a chat but didn't want to worry them,hubby was worried about leaving me as it was,and my two best mates who i know i could ring and they would come at the drop of a hat,but i knew this day had to come and i had to cope,thought i was doing so well maybe I'm not as strong as i thought i was only time...
I posted couple of weeks back that Alan had a biopsey done, they have now comfirmed that his Lymphoma has come back .
We are getting a call from hosp on fri as there is a case meeting tomorrow and we should then know more we think he is to have radiotherapy .
And we were getting nearer to that 2yrs of check and getting signed off .
Hopefully will go away at weekend go and see my mum .
Nanaboo
Hello everyone, I just wanted to pick your brains. My husband has follicular lymphoma and has just finished 2 year maintenance therapy of Rituxamab and had scans on Friday and results due Monday 24th. However after 3 years of dealing with this we (both of us) have come to the conclusion he is not dealing with this so can anybody recommend counsellors? I am going to check with the hospital in London on monday and ask their advice too but I am not enough now, I feel I cant reach him I think he needs...
Saw my oncologist yesterday and starting chemo next week which I am terrified about. Have to decide today whether to try the cold cap or not and am really confused. How life changes the only cap I've ever had on my head was when I used to have hilights done, those were the days!
Hello all
Sorry I haven't been around for a while. It's been beyond difficult here at times.
Since I last wrote, my husband has had another stent fitted as the first had slipped into the stomach, which made eating virtually impossible. He had 3 units of blood transfused on new years eve due to severe anaemia again. His levels were down to 8 and a healthy male of his age - 45 - should read between 14 and 18.
He has lost 2 and a half stones in weight since in recent months due to disease...
Hi there for all who knows me just to let you know mum is in hospital and we just got told she only has days left its been quick she was taken in on sunday they thought it wazs fluid but it turns out its a chest infection but she cant fight it no more i will keep you all posted
jean
today is the 5th day after my first chemo and i feel rough today somehow bit sick and just weird and very tired although im not sleeping at all well seem to be hyper during the night though think im over the worst for now well hope i am ........anyways apart from the really bad sore arm i had for 2 days and the awful tiredness that i felt on friday but its the spaced out feeling i find so difficult to put up with now is this normal ??....cos i dont know whats normal and whats not normal had the hot...
