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Hi Everyone....The title above says it all....if any of you have not yet read The London Marathon..My Diary ...in the forums part of this site it tells of a young girl Rosie who has a terminal prognoses measured in months maybe even weeks....she is trying to set up a charity The Magic Wand Foundation....to give terminal adults a " what would you wish for " wand .....if any of you have any ideas or thoughts you could pass on to her to raise fund i.m sure she would be most grateful.......Thanks johnb...
What a great day our Dear friend Rosie is home, lets all try to help with the charity she has started.
Today has been a rubbish day, Dads goodbye is all sorted and today there was nothing to do, didnt need to ring Wales to check he was ok suppose have been kept busy the last couple of days,losing him on sunday evening,going to see him one last time on monday, arranging his goodbye and travelling home Tuesday and now nothing....just an awful feeling of complete loss and emptiness.
I feel so cold I just cant get warm.
Just not ready to say goodbye on Saturday, why does that have to be so quick, why...
Hi
I've been told that I have a malignant phylloides tumour and my searching of the internet implies that this is rare (a lot of information leaflets don't even go into any detail for malignant versions!).
Does anyone know about these? What I can expect? If I should have a full mastectomy rather than try to save any breast? Can it spread to other organs?
Help?
Thanks
A
Meeting with the Consultant went ok but for the time being she cannot tell me much as Bert's blood count is still not moving, they will do a bone marrow aspiration around day 38 which will tell us if he is in remission for the 2nd time, If not there is not much else they can do other that support him with transfusions and treat the infections. If he is in remission and we still don't have a date for BMT before Christmas then he will need more chemo to keep him there. On the other hand if...
Tomorrow morning, I have to go to my local hospital for my 4 monthly review at the ENT clinic, s**t, why do I let myself get so worked up, so bloody anxious!!
I'll be 2 years post treatment on November, sooo lucky, but the effects of cancer never goes away! It's all about the "what if's" anxiety and depression with me, at times like this!
Does anyone else get so worked up! Since the end of my treatment, I have a real hard time walking into any hospital, even family births...
... from the rooftops! Last night Andrew tried cream of tomato soup - his tube was clamped and this was a test to see how well he tolerated it. Great success, so this morning the NG tube was removed from his stomach and he tucked into a bowl of oatmeal, topped with brown sugar and full fat milk. We did a couple of walks around the quadrangle and now he's studying the menu for lunch - his appetite is definitely back and it was with great reluctance that he ordered the omelet (he's longing for...
Why did I allow my hopes to be raised only to know they would be dashed?
My oncologist told me 2 weeks ago that I was not eligible to go on a drugs research trial because melanoma was found in one node in my groin & one in my pelvis (classed as 2 areas for research purposes). I eventually got my head around it & accepted it but then at the appointment with my surgeon last week he queried the 'grey area' of the guidelines on one of the drugs trials and arranged for the clinical research nurse...
Since my courageous and very stupid decision to try work on Monday I have really been suffering. Well I couldnt ring the mac nurses and tell them of my stupidity could I so decided to suffer in silence (no probs going to hospital Thursday would mention pain then...)
Have not managed to get any sleep for two nights and last night even had to vacate my lovely bed because every time my other half so much as even flickered the pain was awful, so picked up trusty v pillow and headed downstairs to at...
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