Malignant Phyllodes Tumour - Information

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FormerMember

21 Oct 2009

I've been told that I have a malignant phylloides tumour and my searching of the internet implies that this is rare (a lot of information leaflets don't even go into any detail for malignant versions!).

Does anyone know about these? What I can expect? If I should have a full mastectomy rather than try to save any breast? Can it spread to other organs?

Help?

Thanks

FormerMember over 14 years ago

I too have a Phyllodes!! We are a rare breed!!! xxx
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FormerMember over 10 years ago

<p>Do either of you still use the site...? i just was diagnosed with one, had a lump last year which they thought was a fibroademoa and now its returned and been told it is actually a phyllodes. I am pretty scared x</p>
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FormerMember over 10 years ago

<p>Do either of you still use the site...? i just was diagnosed with one, had a lump last year which they thought was a fibroademoa and now its returned and been told it is actually a phyllodes. I am pretty scared x</p>
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