Malignant Phyllodes Tumour - Information

Less than one minute read time.

Hi

I've been told that I have a malignant phylloides tumour and my searching of the internet implies that this is rare (a lot of information leaflets don't even go into any detail for malignant versions!). 

Does anyone know about these?  What I can expect?  If I should have a full mastectomy rather than try to save any breast?  Can it spread to other organs?

Help?

Thanks

A

Roo
  • Former Member
    Former Member

    I too have a Phyllodes!! We are a rare breed!!! xxx

  • Former Member
    Former Member

    <p>Do either of you still use the site...? i just was diagnosed with one, had a lump last year which they thought was a fibroademoa and now its returned and been told it is actually a phyllodes. I am pretty scared x</p>

  • Former Member
    Former Member

    <p>Do either of you still use the site...? i just was diagnosed with one, had a lump last year which they thought was a fibroademoa and now its returned and been told it is actually a phyllodes. I am pretty scared x</p>