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A friend has head and neck cancer. Palliative treatment only now. His partner phoned me tonight. (they live 200 miles from me).. He has a PEG tube in for the past few months. Tongue is gettting bigger and she is exhausted with all the washing because he is dribbling and coughing up fluids. I think she needs help with this and have been looking on websites for disposable waterrpoof pads to protect bedding etc.
Apparently these will not be supplied by nurses. Why ?? Macmillan nurse has been out today...
Well managed to get the tea sorted and quite nice it wa too, but by this time was starting to feel quite crappy so headed off to bed, didnt even bother with the laptop just lay watchin TV then fell asleep and managed to sleep right through until 8 this morning....result.
Off to the hospital for my radioactive injection and then mum took me over to morrisons for a bit of shopping and some lunch before I had to have the scan.
Into the scan room and lying on the thinnest bed I have ver seen, so thin...
Feeling like its all a bit much at the moment. Clive has been a bit down as his back is giving him constant pain and the cocodomal has bunged him up.
As I like to be busy, i am finding it hard seeing Clive not moving off the sofa much, and me rushing around doing everyrthing. Then I feel soo guilty for feeling cross. Clive says it feels like he is waiting to die, and isn't very motivated to do much at the mo. Anyway we are off to get results from bone scan tomorrow, so will see what oncologist...
MRI tomorrow 25/11/09 and I'm nervous i feel fine but that don't mean nothing, i pray it don't show anything not sure if i can cope going through it again. i hope i don't have to wait too long for results and i hope my legs carry me into that horrible little room to get the results, think its going to be a week of not much sleep and the dark little demons trying to sneak in and take over the positive thoughts.
xxxxxxxxxxxxxxx
Someone mentioned in their blog yet another storm happening on this site. Well I think there will always be a storm of some sort here, were all people arent we....its what we do?? I wanted to remind everyone of something I am sure we all heard as children and it goes a little something like this ''If you cant say anything nice dont say anything at all.''
Anyway back to me because I love nothing more than talking about myself!! (hehe) Dan and I went to the local Hospice yesterday...
hi there - hope everyone is ok - well i have been really busy since i last bolgged but have managed to keep popping on and seeing what everyone has been up to - i went to have my tooth removed today - and as i have said before this is something that i was really dreading - i am so scared of the dentist - anyhow - i went with a PMA and guess what? it was out within a few minutes and i didn't feel a thing - it came out in one piece as well so i was over the moon - my fear of the dentist today has dipped...
Tommorow is my mums funeral. my brother and sister have took control with everything and i had little say, ok i thought people deal with loss in different ways.
They asked me to write the speach for mums funeral which you can read on the previouse blog. and they have re written it them selves, its no longer a love story/ fairytale which is how i saw my mums and dads life together its all about how they both were ill and died. as if we did't no that. im so mad im thinking of not even going tommorow...
I had my 4th chemo last week and now starting to feel human again apart from hidious taste in mouth I know i am on the mend when i can drink coffee without it tasting like poison . 2 more chemos to go then an op then R.T seems such a long haul . Good news is my breast lump is now 1cm started off 2.6cm . Does any one know what to expect from chemo 4 and 5 will it get worse i have T.A.C. chemo and have the horrible injection the day after each time . It seems to be as soon as i have the injection i start...
