have no idea what i am doing

Less than one minute read time.

A friend has head and neck cancer.  Palliative treatment only now.  His partner phoned me tonight.  (they live 200 miles from me)..  He has a PEG tube in for the past few months.  Tongue is gettting bigger and she is exhausted with all the washing because he is dribbling and coughing up fluids.  I think she needs help with this and have been looking on websites  for disposable waterrpoof pads to protect bedding etc. 

Apparently these will not be supplied by nurses.  Why ??  Macmillan nurse has been out today and district nurse goes weekly.

He is not incontinent, so that is why he cannot get any supplies.  Why is there such a difference, they are both bodily fluids?

I am trying to order some stuff and send it to them.  Does anyone know any good websites or suppliers I can arrange to send for them

Would welcome any suggestions please

Anonymous
  • FormerMember
    FormerMember

    Ambrosia,

    How difficult for your friend...seems strange that there is no help for them with pads etc.

    I have nothing constructive to offer but wanted to wish you all the best and say how lucky your friend is to have you.

    Debs xx

  • FormerMember
    FormerMember

    Actually, it might seem a bit out there, but if you can't find specific pads - what about the the large square ones you can buy for toddlers to lay on beds at night in case of accidents.  They also do them for puppies.  They are just large plastic backed, slightly padded and absorbant and would easily fit over a pillow?

    Just a thought.

    Debs xx

  • FormerMember
    FormerMember

    Hi There

    You can buy disposable waterproof mats that are designed to be used in children's beds for bed wetting/potty training.  

    They come in different sizes.  The ones I have seen are about the size of a pillow case.  I imagine they would be in most supermarkets with the nappies.

    The material is quite soft, so not uncomfortable next to the skin.  

    As supermarkets sell them, it may be worth looking at a supermarket that offers home delivery.

    I realise this isn't exactly what you were looking for as your friend will have to buy them.  But I thought it may help until there is a better solution.

    Jo

  • FormerMember
    FormerMember

    Debs

    Great mind think alike!!

    Jo

  • FormerMember
    FormerMember

    yeah and as my old Mum used to say "fools seldom differ" lol.....but I say we go on the "great minds" bit instead ;)