Telgirls dance with cance.....19

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Well managed to get the tea sorted and quite nice it wa too, but by this time was starting to feel quite crappy so headed off to bed, didnt even bother with the laptop just lay watchin TV then fell asleep and managed to sleep right through until 8 this morning....result.

Off to the hospital for my radioactive injection and then mum took me over to morrisons for a bit of shopping and some lunch before I had to have the scan.

Into the scan room and lying on the thinnest bed I have ver seen, so thin they put this harness thing around your arms to hold them in place because there is no bed to lay them on. Back on paranoia street, everytime the woman moved was wondering if she had seen something but as she is positioned outside my line of vision just  had to ly there and tell myself to stop being so stupid.

Scan over and she lefts me loose, I ask the inevitable question and get the prescribed answer, "I cannot say what the scan is as the doctor has to see it"...then she follows this up by asking me if I know when I am seeing the oncologist and when I say I have nor had a date she suggests I give them a ring to find out when I am due to see him....whoosh and straight back to panic mode why would she say that...she can obviously see the panic and tells me that she is the most impatient person in the world and it wont hurt to try and hurry thiings along and let them know that I have had this scan and am due a ct scan next next...dont they already know this as they are the ones that ordered them. So got outside and rang the mac nurse and relayed my conversation and she said she will ring the oncologist secretary and try and find out when the appointment is. I know it doesnt matter if they find anything on these scans because treastment will still go ahead just maybe it will need a tweek here and there but this not knowing and jumping to all the bad things that coud show is just the pits.

Anyway I have ranted on for far too long now so will go and try and chill out.

take care love Terri xxx

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  • FormerMember
    FormerMember

    Aww Terri I know how you feel, I was dx with a Grade II Oligo on a Friday and bumped upto an Ananplastic Grade III Oligo by the Tuesday!  You'd think I would be used to it by now but last Friday the registrar wrote Grade 4 GBM on my prescription for the chemo - straight away alarm bells started ringing!!!!!!!!  

    Of course they may have written this on every prescription, but usually my specialist nurse has already put it into the pharmacy for me.  Maybe its the only way of getting me the drug - I don't know, maybe it was a mistake......but realistically they would have had to tell me at some point if my tumour had mutated already (seeing as I haven't even had any regrowth - you wonder where all the fear comes from).

    Paranoia is a nasty thing......we torture ourselves don't we!

    Keeping my fingers crossed for good results for you.

    Love & Strength

    Debs xx

    • FormerMember
      FormerMember

      Apparently a full body MRI scan can take eight hours to interpret by a trained specialist - it is not like an X-ray. Lots of people expect an instant result and the waiting game in cancer is one of the most frustrating parts, Wait for the postman! Wait for the bloody bus to get to hospital! Wait for a scan. Wait to get an appontment.Wait to see a doctor. Wait for the pharmacist! Wait for treatment! Wait to see if it worked!

      No wonder we are all so bloddy demented! The most frustrating part of this filthy disease is we have to play the waiting game but cancer does not. That clock ticks relentlessly on from the second it decides to mutate one of our cells. So Terri babe, like the rest of us, play the waiting game. You don't have to like playing it. Have a scream and shout. Vent your spleen. Get it out of your system. Then pick yourself up, dust yourself off then WIN the bloody game!

      Keep smiling

      love

      Drew

      X

      • FormerMember
        FormerMember

        Terri, I wish you all the best with your results. Sometimes I think the staff at these places could show more empathy to our situations and think before they speak. You are telling yourself the right things though. Like you say, you're gonna get the treatment anyway, so good luck with the chilling hun...

        Love

        Monna xxxx

        • FormerMember
          FormerMember

          Hi Terri, hope you've managed to chill out. I have the greatest respect for the people who work in health care. But I wish they would realise that we are individauls and treat us as such instead of just another patient the same as they see day in day out. Problems arise when we see that many different nurses and doctors that some info gets lost in the system. That is scary and it puts so many different thoughts in our heads such as they are not telling us the truth. Try not to get too worried it can only be a good thing that they are giving you scans to make sure of the diagnosis, to be able to give you the treatment you need. Good luck with the results I'm sure you will be fine.

          Love and Hugs Amanda xx