Here we go....

1 minute read time.

Hi, it feels pretty weird to write onto a blog, who will read it, who will relate, who will flick past it....

but in the end I guess that doesn't really matter too much, although I am the ultimate people pleaser, but I'm doing this for myself, to offload and come to terms with stuff. 

A close family member was diagnosed around 18 months ago, initially there was positivity and talk of curative treatment etc but now we find ourselves in a land of palliative treatment/management and a prognosis of months of life left, yet who really knows how long that piece of string is...

so I am contemplating a lot today, of what has gone before and what may lie ahead....

and what help or support have I provided, very little I feel, it's weird when you have a family member going through something awful like this, that deep down you love but you don't really spend much time with, so how then to cope, and what to do. 

to carry on as before? to see them rarely but have them within your heart as you carry on your day to dayness? or to increase that contact

I get so caught up in the what I should do to be a good person, that I quiet that voice in me that's saying something different, like you should go and see them more often, make the most of the here and now, but what if that's not what I want to do, what if that's too hard for me right now, what if that's just doing what I think I should do...

I want to be honest on here and with myself, sometimes that's really hard to do, I think I'm saying all of this because I cannot be this honest anywhere else and I want others to see that maybe if they are feeling similar, that is ok, we are all human, facing a terminal illness is hard and how to navigate it is hard too. 

I think to offer support that feels doable for me, when I can, and to show up with love and kindness feels like the right way so that is what I'm going to settle with today....

much love to you all out there, dealing with your own, or others', situations xxx

Trixie26
  • Hello Hugs

    So, iv'e read your blog - and it's great of you to share how you feel. It must be hard knowing how to support someone with incurable cancer as we are all different. 

    I am an incurable - and for me I want people to treat me as if there's nothing wrong with me, yes I value the support, yes I do talk about my cancer but I just want to get on with my life - and yes we are all different - that's just me.

    You are so right when you say "I think to offer support that feels doable for me when I can" is the perfect answer. 

    The Community is divided into different groups and you may wish to join this group:

    Supporting someone with incurable cancer forum 

    Just click on the link I have provided and it will take you there. Once the page opens up, click on "join" on the black banner at the bottom of the page. 

    Thank you for your support.

    If you need any help in navigating the Community, please do get back to me.

    Kind regards - Brian.

  • Hi Hugs

    My first close encounter with cancer was with a relative with stage 4 cancer. He didn’t live locally, so was similarly someone I loved but didn’t normally see much of. My husband and I did get more involved as the situation advanced, mainly because it became apparent the relative’s wife and daughter needed more support. The patient himself just wanted to continue as normal. 

    Some years later, I find myself living with stage 4 cancer. I, hopefully, am not near the end. Like Millibob, I just want to be treated as if there is nothing wrong, because mostly there isn’t. Some people manage this. Some have got closer. Some have disappeared. It’s not always what you expect. People who I didn’t have a close relationship with have provided a lot of support. One person I thought would cope runs a mile if the subject turns to my cancer. 

    So what you feel like doing today is probably the right thing to do.