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http://rayandmave.wordpress.com/
Phase III trial, expecting to enrol 400 adult patients affected by malignant pleural mesothelioma with disease progressing after a pemetrexed-based chemotherapy. The trial investigates the administration of NGR-hTNF plus best investigator’s choice (BIC) versus placebo plus BIC, where BIC includes either supportive care alone or combined with one chemotherapeutic agent (either doxorubicin, or gemcitabine, or vinorelbine). Randomisation ratio will be 1:1. Before randomisation...
This is just for friends of Sunny Leith. The rest of you, please skip over this blog.
I have been staring at this for 2 hours worrying if it comes across ok and is it going to cause bother etc so am just going to shut my eyes and press send cos life is too short. My intentions are honorable.
A friend has just said the phrase 'least said soonest mended' as I was writing this and I am going to take that advice and delete most of what I wrote here as I think she is right..... especially in this...
Charlotte came in today to help Mo with her personal care I told her how Mo was and that she may not be able to do anything today considering.Saying that,Charlotte managed to wash Mo's face and hands and apply some lotion to her dry skin and she decided to change Mo's nightshirt which I helped her with.Suddenly Mo just 'kicked off',started growling and getting angry with everyone,Charlotte,Sue and me she tried to what seemed like scratch people anywhere she could,hands,face, whatever and wherever...
Chris the District Nurse came in today with another new nurse to sort out Mo's syringe drivers and check them.There was a slight setback one of the meds had run out,the medazalam,I couldn't believe it how can you RUN OUT of meds?.I wasn't very happy about it and chewed the nurses ear off about it."This was supposed to be an easier transition from Mo having the cancer to Mo eventually dying,sad as it is" I told the new nurse.After speaking to Chris the District nurse we did get to the bottom of why...
Paul came up today to see his mum,still very stressed and upset as we all are,is not an easy ride for any of us but then dealing with cancer isn't easy for anyone,even harder when its family!.Its bad enough for Paul that his mum is dying and there's nothing we can do about it but on thursday night while he was here Ewa's brand new motorbike was stolen!!. A couple of bloody arseholes stole it, probably just for a laugh and the worst thing was Ewa said she saw them doing it. She dashed out to try and...
Mo's had a very busy day today not what she or I wanted at all,too many visitors stress and unsettle Mo. Firstly the district nurse and another nurse came in to check the syringe drivers and charge them up,which I didn't realise had to be done everyday. Unfortunately thanks to a cock-up at the pharmacy the meds that the nurses wanted hadn't been delivered so they had to come back,which could easily of been avoided.Take note Station Plaza pharmacy,Hastings!!. Charlotte,Mo's personal hygiene carer...
The district nurses came round today to set up the syringe driver,to be honest the whole thing freaked me out.I just imagined a large box with ALL the meds pumping into her system at once turning Mo,someone I love very much,into a zombie/vegetable,how wrong I was thank God!!.The syringe drivers aren't as obtrusive as I thought they look a rechargeable battery charger and can be hid under the pillows out of sight.They can also be carried in special pouches and aren't noisy at all the only problem...
Kerren the respite carer came in today on time and polite and even said "Good morning" to me.I explained about Mo's cancer being a lot worse and now it was just a 'matter of time',days and weeks unfortunately she was also very surprised at the progression of the cancer.I was going to cancel my respite but my neighbour Brian, talked me out of it he said I needed to get out and even while I was out that I could come back anytime I liked and send the carer home if I wanted.If I HAD cancelled my respite...
Its October 2011 my mum has been diagnosed with stomach cancer with 12 months to live. I am her only child, she is, my best friend, my advisor, my critic, my biggest fan, my world. This blog will follow from the start to the end of this wonderful woman's life.
I am 36 and too young to lose my mum at 68. I now need to learn how to cope with this to be strong for her and to help others who read this blog.
So this week we have heard that ' the cancer has spread' to 'its advanced you have 12 months...
I look after my husband full time now as his condition has deteriated. He has a Brain Tumor.
There is very little conversation during the day and I am finding it very lonely as all my friends and family work during the week and lead busy social lives which I can no longer be involved in. There is only so much cleaning and cooking I can do to pass time.
So what things do other carers do to help stop themselves going insane.
