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I had my last dose of Capecitabine on Friday and I'm now enjoying my 7 days 'off'' before it starts all over again so I thought I'd pause a minute and take stock of where I am.
Last weekend I attended the Isle of Wight music festival and had a great time watching The Who, Queen and the Stereophonics plus loads of other bands. Even though it had been booked before I was diagnosed I was determined to go. 4 nights under canvas was probably not the most sensible thing I've done and...
I am not sure if anyone will visit this page , and that is ok. IO want to do this for me and my very dear and nearest. To keep me sane or at least I hope it may . I have spent the last three weeks away from work . To date I have been a passionate and loyal worker who has never taken more than four weeks off i ( due to a broken bone) in 15 years other than minimal maternity leave with four children. I have never felt the need for it regardless of sleepless nights or feeling a bit rubbish BUT I had...
I recently finished the book Tea and Chemo', which I very much enjoyed, and the author, Jackie Buxton, was kind enough to thank me when I tweeted as much. However she talks about being someone always on the go, busy, active, in control (she is better with her alcohol than I am!) and it is like looking in the mirror- is there a cancer type?
As I finished the book I was also struck by what it all did and must continue to do to the family, our girls were 9 and 12 when I was diagnosed and have...
To explain briefly my dad is my father in law. I lost my biological dad when I was a child o never grew up with one. I always felt like I would never get a dad and would never be able to experience what that was like. Then I et my hubby and his dad became my dad. It's such an overwhelming feeling. I can't explain how happy they made me.
Just before we got married we found out that dad had cancer we thought it was in the lungs but after tests it started in the kidneys and had...
I talk a lot about looks. (wigs/make up etc) and I know there are many cancer patients out there who feel very strongly about not masking their looks and are angered by people like me talking about looks at a time like this. I am not at all ashamed to have been diagnosed with cancer and I have shared this with all those close to me so I'm not masking cancer but just showing everyone I'm still me. My hair and my make up has always been part of me and defines who I am. I am not trying to hide the...
Well it's late early hours in the morning, actually 00:39. I've not been asleep yet since my 3 hours sleep last night. I got to sleep at 3:00am this morning until 6.15am. I am actually really drained and tired... But sleep isn't happening at least for a bit longer.. I try everything to relax not working now I just lay in the dark stating, while my head goes round in circles so worried, stressed and scared about my mom being terminally ill, no more can be done for them too help, trying to enjoy time...
So I'm outside the place, waiting for my husband to arrive. Coming out of the tube station, my emotions give in and I get very tearful. The portacath area is still quite sore so I guess I wasn't ready to drive yet as the seatbelt lay exactly where the tube is, but I did this morning and I got my wig too. I needed it tonight, at home. It was quite a painful drive to the shopping centre (where the wig was) and then back to the train station to park. The seatbelt was rubbing on the tube and I tried...
Before treatment started I love all foods, everything anything I'd give it a go, even black pudding, yes I no yuk, but I gave it a go.
Now three years later, after treatment, I find I'm now having a food fight, I fight food, it fights me..
Veg is a one big fight but, I'm starting to like a little Colliflower, nothing else yet. I could eat sweet and sour, rice every day, but that a no no..I have a family and need to do food shopping, I can't see the point, I don't what to eat it, but...
Hi all
My story so far I was diagnosed with follicular lymphoma on July 2nd 2015 at the age of 45 it was stage 3s I went threw 8 rounds of rchop my last one on Christmas Eve all went ok no infections etc since then I've been on retuxamab once every 2 months I had a ct scan which my oncologist said I had a good partial remission I've was feeling back to my old self by March and getting back on with my life great then unfortunately I noticed a few small lumps in my lymph nodes went for a biopsy...
Well it’s been a couple of months since my last little blog and life continues to bounce me around with ups and downs. One seems to focus more on the downs and less on the ups but I guess this is a fairly natural response to any sort of trauma. I am slowly discovering the new me – for sure I have changed , I often look for the “old me” but I just can’t find him ,so, slowly I am embracing the new one and learning the things that are important now. It’s a hard journey trying understand my new life...
