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hello all my lovely mac family its been a while since my last blog and i thougtht it was time to come and check in...last time i spoke to you i was about to start my clinical trails....i nwas then turned down for my clinical trials as i was not well enough to go throgh with it...which upset me dearly...as that was my last hope really...but im feeling quite well in myself and im trying to keep my self active even with this rubbish weather....ive gone back to work as i feel i need some kind of normality...
Just joined this online blog thing!!! I don't really know what i'm doing.
My husband was diagnosed with the Syndrome about 4 years ago. Things have been ticking along fine....3 months ago we were told it may be in his lungs now (he already has it in his gut and liver). A visit to the local A/E confirmed this....we were also told he has a big tumour on his Aeorta.
For some reason this has hit me very hard....I am terrified and want to run away. I can't cope with feeling what I'm feeling...
Hi all,
Well I 've got my CT scan appointement for next Tuesday, and I'm told the appointment for my oncologist for Friday 10th is on the way, so will they do anything before Christmas?
I'm trying to keep myself as busy as I can, out for lunch tomorrow (today's got cancelled!) then a christmas concert in the evening, reflexology tomorrow morning and friend to lunch, and we are away in our motorhome with Locovan this weekend, back for Tuesday for my scan, up to see our Grandaughters...
steve went to chrstie this morning to have drain put in tummy, but his blood is too thin, so he was admitted, in for few days has been giving meds to thicken his blood before they try the drain again, they will do a scan of the tummy as they seem to think the cancer has spread, when will it all end? so we can spend quality time together before he is too sick
I have been dreading christmas but with the help and support from a very good friend and kids bugging me i have been getting on with it ,shoppings all done ,wrappings nearly all done , tree ordered ,decs bought i couldnt face using the old ones too many memories , all was going ok till today ,when i sat down to write christmas cards ive had to stop for a break as is just so painful and i cant stop crying and i havent felt so sad for a long time , i know this is prob *normal * and its not just not...
Well, I'm not sure how to write personally yet but, to everyone who replied to my last blog 'Can anyone help please?!!!' I would like to say a huge thank you for all your reassurances. I know I will have more moments when I get worried about something and it's good to know that there are people out there who can help. We may be strangers and distant in familiarisation but, we're not so estranged and unfamiliar in under one main title......we're all human beings in a time of need. ...
Feeling very tearful today, my bestest auntie has gone in for op on bowel. She was wonderful when i was recovering from my mastectomy, coming all the way from Worcester, down to Cornwall to look after me. We have always been very close, more like sisters than neice and aunt.
Thank goodness our school is closed today due to snow and ice, explaining to five year olds why you have water on your face is tricky!
Sending her all our love and best wishes for a speedy recovery!
XXXX
The docters are amazed at dad. he hasnt eaten for 6 weeks. His prefered place to die is at home with mum. They treated him very well at the hospice but dads happier at home. Dad has been very restless and we called out the chapline from the hospice on sunday as dad is not at peace. We have tried to talk to him but he doesnt say anything. Its so sad as he has lost so much weight and is very out of it. They sent a Maire Curie nurse round on saturday night. I also stayed with mum and they have phoned...
My wife has done so well with her fight against breast cancer. She has been braver than I can ever imagine someone could be. She has had breast cancer, treated with surgery a couple of times, chemo, radiotherapy and now hormone therapy. I think she is finding this last one the hardest as she struggles to sleep which is a torture in itself.
Even though I have lived with her through her experience I still have no idea what it must be like. The mental battle has perhaps been harder than the physical...
Monday is the day of Tony's Funeral. I am feeling a bit weird because I am strangely looking forward to it. There have been so many lovely gestures - peole writing and reading tributes, a friend playing bagpipes, army collegues in uniform and playing the trumpet, many many guests attending and a horse drawn hearse. I feel it will be a very special day and one he would have been extremely proud of. I am still feeling remarkably calm. I guess I will find out tomorrow if I can cope?
I miss you...
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