Just joined this online blog thing!!! I don't really know what i'm doing.
My husband was diagnosed with the Syndrome about 4 years ago. Things have been ticking along fine....3 months ago we were told it may be in his lungs now (he already has it in his gut and liver). A visit to the local A/E confirmed this....we were also told he has a big tumour on his Aeorta.
For some reason this has hit me very hard...…
