A trip with triple negative breast cancer

  • EC Round 1 days 9 and 10

    It feels like these two days are the transition days back to normality. The Filgastrim injections still leave me with some neck pain but it’s ok so long as I take a paracetamol when I start to particularly notice it. The grinding bone pain in h...
  • EC Round 1 days 7 & 8

    Am interesting roller coaster, this one. After the uncomfortable hands and shoulder of day 6 (which had rendered me unable to operate a knife or deal with bra hooks), I decided to manage day 7 with ibuprofen. A much better night’s sleep and wok...
  • EC Round 1 days 5 and 6

    Day 5 started out very well. I guess I was still benefiting from the Dexamethasone, and I had got the acid reflux well under control. I had been absolutely determined to complete my 200th parkrun. With a still stitched and healing portacath, I knew t...
  • EC Round 1 days 2-4

    Days 2-4 are the dexamethasone days, I guess the steroids aim to take you through the first hit of the chemo. I took 2 with the infusion and then had 12 to bring home - 2 to have with breakfast and 2 with lunch on each of days 2-4. I am also crunchin...
  • EC round 1 - day of infusion - demystifying the chemo day ward

    Everyone on chemo has to have a first chemo appointment, where it’s all a walk into the unknown. Today was mine, kitted out with my new Bard Power Port. So I write this to try to demystify it for other newbies. The appointment was 9am and a bun...
  • I’ve got the power

    I had a “power port” portacath device fitted this morning. It’s a small port that sits in your upper chest with wiring into your veins and can be used for delivering chemo and taking bloods. It’s an alternative to the PIC...
  • Second oncology appointment

    I returned to the oncology department and this time met the lead consultant for breast oncology. This felt a much better meeting where I got more personalised input on my cancer risk and on my likelihood of tolerating chemo. The upshot is I signed on...
  • First oncology appointment

    I think I am set to be permanently disappointed. I had my first oncology meeting today. It was yet another appointment where I got little information I didn’t already have - nothing specifically tailored to me, and a feeling that they weren&rsq...
  • Arrival of snail mail letter - oncology appointment is in the diary

    The snail mail letter from the hospital arrived today, and my oncology appointment is booked for 27th April. I can take someone with me, very difficult choice between my lovely supportive husband, and my doctor niece, who happens to be a paediatricia...
  • An interlude of normality

    On my better days, I realise there is no point wasting today on worrying about what tomorrow will bring. The oncology appointment will get set up and I will hear about it by snail mail letter. Possibly Easter will get in the way too. Even if I move s...
  • Relief and frustration

    I had my follow up appointment today. Naively, I expected all the disciplines of the MDT to be at the clinic so that it was a one stop shop to agree what happens next, even if it meant a succession of meetings. But no, it was just the surgery team fe...
  • It starts

    Once upon a time there was no breast cancer. Well there probably was, but I didn’t know about it. Here we are in early April, diagnosed, stage 1 of my treatment completed (wide area excision plus sentinel lymph node biopsy), a few days away fro...