A trip with triple negative breast cancer

  • Step down slowly

    Today was my 3-weekly oncology review and crunch time on whether I can finally come off the steroids. I haven’t been feeling good for the last few weeks. Aches. Stiffness. Headaches. Feeling tired and listless. Sometimes feeling slightly queasy...
  • Toxic positivity

    If one more person says “you’ve got this” or “you are so strong”, I think I might floor them. The other day, someone at the swimming pool told me she wouldn’t have been able to cope if she had had all the issues I ...
  • Adrenal insufficiency?

    Seven and a half months of prednisolone and still going. I had been warned the latter stages were the hard bit. At the beginning, on very high dosage, when I felt continually jittery and couldn’t sleep or taste anything, that was hard to imagin...
  • Gout

    The joint at the base of the big toe on my right foot has become increasingly painful, red and inflamed over the last 4 days. I contacted the acute oncology service yesterday, but they weren’t particularly interested as I have a review with my ...
  • Inflammation

    Today’s situation. Largely housebound having attempted to reduce my steroids from 2micrograms to 1 a day. Ok it’s a 50% reduction but a minuscule amount compared with the blockbuster steroid dosage I was on when this all started. Every st...