A Carcanoid Syndrome Carers View

Hi Suco,

I am so sorry to hear of your husbands recent bad news.  I too found myself in a similar situation some years ago when II cared for my Mum after she was  diagnosed with Lung cancer, and then with a  secondary brain tumour.

I too found myself wanting to run away as the news of the brain tumour was just too much to bare and I found it really difficult to speak to other family members as they  were all falling apart . However I was fortunate to have a very good friend who supported me through  both the good and bad times.  She also encouraged me to take occasional time out to recharge my batteries. Do you have support from friends or family?

I too have recently joined this site and have found the kindness and support of other members invaluable. It is amazing just how much inner strength that we each have in these circumstances but it is also good to know that there are others here to speak to when we need some extra strength or advice,

Contact me any time if you wish to, but for now I  am sending a Big Hug and Lots of Love

Take care, Polly.xx.

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 Do you have a good support network in friends or family?

Polly, Johns family don't bother with him, they never have, they don't visit ....It's all down to me. I have no support network at all.

I have found out about a carers group on Thursdays but "something" always happens and I can't go!!!

Hi, Suco i know its been a while since you posted ,but i have only just found this link, i have carcinoid cancer and i have the syndrome because its now in my liver ,and i have also had it for five years now, if i can help at all please let me know, i hope everythings ok ,

Julie