Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
Unsure how to get started? Take a look at our help pages on blogs.
Right apart from a stinking cold I am back to my old self again, feeling a bit more positive, thanks for all who have made me feel better with their advice. So I start radiotherapy next thursday and in theory I should be still on a treatment break but feeling quite rough with this cold which isn't like me, but then I'm not me anymore I am the new cancer me.
Well I will still try to shake this off and go out for a couple of meals or something and then the daily grind of travelling from Southend...
The hardest part for me is the speed with which life was turned up side down once the true diagnosis was reached. The brutality with which DFSP smashed into my life and wrenched out of my hands so much of my life,(maybe for a period of time) its mind blowing.Its hard to express this to loved ones because they are all willing you better, hoping its all going to be alright, and its not that I am not a fighter but there are times when I just want to scream 'this is awful!' .I have never been in hospital...
Just got back from the hospital with not good news, my pelvic tumour has more than doubled in size to 8cm in 6 weeks and is what is causing my bladder not to work, my lung mets have grown but not as drastically. I am now booked in to start 4 weeks of radiotherapy every day at London on the pelvic growth, after that i will be going on Votrient (pazopanib) a new drug.
Trying to stay positive but man it is hard, i feel like crap, have got a stinking cold to boot.
Just can't help thinking this is the...
For so long nearly two years, the diagnosis had been simply a harmless keloid scar which was growing and angry, YES a nuisance, the size of my fist,ugly and painful but nothing sinister.
However it became apparent by the look on the medic's face that he profoundly disagreed, at this moment I felt sick, I thought 'if it is not a keloid scar, then what is it?'
Soon I would learn the term DFSP!
So ooo ooo, The world is still turning and the worst of the oxy is out of his system. To be confirmed on next oncology but seems that the multi-function vitamin pill he's been taking to try keep immune system up contains enough folic acid to cause some of the cold sensitivity. A chat for me to have with the nice lady at the chemist chain then.
In a nice way.
In himself things are looking positive. I get top trumps on the aches and pains. Pretty sure if I could get good sleep the sympathy pains...
Had a bit of a wobble today, panicking about my consultation tomorrow. Just can't help thinking it is going to be bad news. For the most part I am pretty good at putting it out of my mind and getting on with it, life that is, but had some panic attacks and a very heavy chest all day. The thing is that since my Consultant told me the news that my cancer is incurable she is the monster in my nightmares and therefore seeing her is never going to be a pleasant experience, she was the one who made...
My mum had a Whipple's operation May 1st 2012 at Guildford, although lives in Littlehampton, West Sussex so we have a 3-4 hour journey each time we visit!She reocvered well after having to wait nearly 3 months for the jaundice and infections to setle. she also had C diff which delayed the surgery.She went on the BILCAP trial to get chemo post op but got selected to be on the "obsevation only" option! of course the cancer recurred in November 2012, and started Cis/Gem chemo in February at Guildford...
