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Have to be honest - every day is good since perhaps beginning of March. Last year was horrible - walking 10 paces left me struggling for breath - then I was diagnosed which was even worse. And then ... the treatment started.
Well we went to the appointment at the pain clinic. It seems his liver is now playing up his blood tests showed up something, they are going to re-do the test next week then act. It doesnt help that dad has so much complications they are limited with what they can do for him, the steroids did not work so they have been stopped. There is definately something different about dad just now, I think that the heart may be willing but the body is now saying no.
I feel so terriby upset. I have just upset my poor 82 year old mum by shouting at her and telling her that she doesn't care about me. That she worries that her 87 year old sister is going to die, that my sisters ulcerative colitis is bad, that my brother is hard of hearing and lives alone. That the neighbour next door is going blind and he lives alone. That my brothers daughter has learning difficulties. My mum might be 82 but she is fit she works 4 days a week 8 hours a day in my brothers fruit...
Just got back from the doctors and the lump is nothing to worry about whoooooo so hopefully I will manage to get some shut eye tonight, thanks fr the offer Carol but hopefully the fact that I feel knackered but overwhelmingly relieved will result in a silent night.
Have also taken the bull by the horns and booked my haircut for Wed afternoon so looking forward in a weird way to that. Might just have to go and spoil myself tomorrow and have a foot massage mmmmmmm sounds good to me.
Positivity breeds...
Another pants night trying to find a comfortable position to lie and get some sleep but managed at last to fall off about 3 ish (seems to be the new witchinh hour for me these days) and was rudely woken at 5.45 by hubby's new all singing all beeping alarm clock. Managed to be civil and shared a coffee before he departed for his daily drive into London and went back upstairs witht eh idea of geting maybe just another hour before the rest of the house woke. Suprisingly I was wide awake and sleep evaded...
Hello
I wondered if anyone else on here has got or has heard of Carcinoid Syndrome?
I am currently having tests to confirm i have it.
I have suffered for last 18 months with chronic diahrea and facial flushing. Pain under left rib.
I am recovering at the moment from thyroid cancer and my oncologist has now just done blood tests on calcitonin, cga levels and 24 urine levels for serotinin.
I believe if any come back raised this means i have tumour somewhere in body. (prob liver)
Please if anyone...
Needless to say the steroids never worked a bit, I didnt have high hopes for them in the first place but tried to remain positive. The pain clinic called on Friday they still did not have his blood results yet and they want to see him today so I am just sitting at my desk having lunch before I go over the road to meet mum and dad for this appointment. I am really lucky that I a) work on the main hospital site in Aberdeen and b) that the end of life hospice/pain clinic is just 2 minutes away from...
Hubby is holding his own, not getting alot better but not worse. His blood levels are slightly better, oncologist said they would normalize on their own after the chemo starts to leave his body. His blood pressure is still very low and needing heavy meds to support it which is a very big concern. Still on the respirator as he is not strong enough to push out the air from his lungs. But he has passed the 48 critical hours. He is still very critical though.
His entire family was here to visit over...
It's been a few weeks since my last post, and Dad is getting weaker. He has been so brave so far, and hasn't complained, but yesterday when I saw him he said he had almost had enough. He was so active before this wretched illness took hold, now he is afraid to move because each time he does, he has a coughing fit and ends up struggling for breath and completely exhausted. He's not really eating a great deal now, so Mum is also losing weight and looking worn out. Friends are all being great, visiting...
