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Hi
I've been told that I have a malignant phylloides tumour and my searching of the internet implies that this is rare (a lot of information leaflets don't even go into any detail for malignant versions!).
Does anyone know about these? What I can expect? If I should have a full mastectomy rather than try to save any breast? Can it spread to other organs?
Help?
Thanks
A
Meeting with the Consultant went ok but for the time being she cannot tell me much as Bert's blood count is still not moving, they will do a bone marrow aspiration around day 38 which will tell us if he is in remission for the 2nd time, If not there is not much else they can do other that support him with transfusions and treat the infections. If he is in remission and we still don't have a date for BMT before Christmas then he will need more chemo to keep him there. On the other hand if...
Tomorrow morning, I have to go to my local hospital for my 4 monthly review at the ENT clinic, s**t, why do I let myself get so worked up, so bloody anxious!!
I'll be 2 years post treatment on November, sooo lucky, but the effects of cancer never goes away! It's all about the "what if's" anxiety and depression with me, at times like this!
Does anyone else get so worked up! Since the end of my treatment, I have a real hard time walking into any hospital, even family births...
... from the rooftops! Last night Andrew tried cream of tomato soup - his tube was clamped and this was a test to see how well he tolerated it. Great success, so this morning the NG tube was removed from his stomach and he tucked into a bowl of oatmeal, topped with brown sugar and full fat milk. We did a couple of walks around the quadrangle and now he's studying the menu for lunch - his appetite is definitely back and it was with great reluctance that he ordered the omelet (he's longing for...
Why did I allow my hopes to be raised only to know they would be dashed?
My oncologist told me 2 weeks ago that I was not eligible to go on a drugs research trial because melanoma was found in one node in my groin & one in my pelvis (classed as 2 areas for research purposes). I eventually got my head around it & accepted it but then at the appointment with my surgeon last week he queried the 'grey area' of the guidelines on one of the drugs trials and arranged for the clinical research nurse...
Since my courageous and very stupid decision to try work on Monday I have really been suffering. Well I couldnt ring the mac nurses and tell them of my stupidity could I so decided to suffer in silence (no probs going to hospital Thursday would mention pain then...)
Have not managed to get any sleep for two nights and last night even had to vacate my lovely bed because every time my other half so much as even flickered the pain was awful, so picked up trusty v pillow and headed downstairs to at...
Oh well I'm annoyed....I posted a blog this morning and it has disappeared off the face of the internet lol. Well I cant remember exactly what I put but it was something like treatment went well yesterday. I expected it would as this Herceptin is a bit of a breeze although I do feel a little tired today. Thats nothing new!! I stubbed my toe this morning on the hoover just as I was leaving for school run, have a nasty gash across the top. I had to hobble all the way to school in the rain and it...
Doctor for intensive care just called and scared me. He is doing the same. She is so negative and I don't really like her, I would like to get him transferred somewhere else but don't think at this point that is possible. She said hubby has massive infection in his stomach area which he has had since being in hospital 4 weeks ago. His kidneys are not working well, they are having trouble keeping his blood pressure up, etc.etc.etc. Not to mention the cancer. His platelets are low from his...
I just need to let off some steam and have a quick rant and rave.
Had a really good day up - hospital appointments and transport all ran smoothly - and then I had a call from my BC Nurse.
I felt fine until I mentioned that I had received my appointment for another CT scan for the shadow on my lung (Wednesday 11th November) which is the week after treatment finishes.
What if it is cancer - what if it is cancer caused by the breast cancer - does that mean all this treatment and stress I have been...
