Kidney Not

  • Acute Interstitial Nephritis - May 2022

    I finished my ipi/nivo dual immunotherapy at the end of March.  The standard approach is for a break of 6 weeks followed by nivolumab monotherapy.   I’m a Big Fan of this treatment.  I looked forward to the 3 week visits for...
  • Immunotherapy update Feb/March 2022

    This post will be an update on the first four cycles of ipi/nivo.  I’ve been having it every three weeks, by infusion, from mid Jan until the end of March 2022.   On day 1 of my ipi/nivo I predictably had a dozy session on the so...
  • Ipilimumab / Nivolumab - 14th Jan 2022

    I have been looking forward to treatment day 1 for so long.  I can't wait to get these drugs inside me.   I am fortunate my treatment hospital is 10 mins drive from my house.  After deliberating whether to drive or get dropped off...
  • Immunotherapy Decision – 23 Dec 2021

    After my Oncology meeting, I have lots of new information to review.  I am delighted that I can choose the direction of travel myself and I’m so appreciative of Oncology that they treated me like an adult, able to make rational decisions a...
  • Hello Oncology - 21st December 2021

    Tuesday 21st December is the important date I meet my oncology team.  I’m desperate to build a good trusting relationship with my consultant.   I have huge expectations for this meeting for obvious reasons.  Add in the waiti...
  • Biopsy – 14th Dec 2021

    I am so pleased that biopsy day has arrived because it is a milestone towards getting some answers and a way forwards.   Clearly there was some apprehension though as I only got minimal sleep the night before.  The NHS pre-procedure gu...
  • Waiting - Dec 2021

    My Urologist has referred me to Oncology and also for a biopsy.   Oh the waiting!  I want both appointments right now.   I don’t know anything yet about my cancer or what the treatment would be.  Or whether the tre...
  • Diagnosis - 24 Nov 2021

    It was my first meeting with my Urologist today after an abnormal abdominal ultrasound scan and a subsequent CT scan. The "thing" on my left kidney is cancer and it has spread to my lungs. My urologist is referring me to an Oncologist and getting a b...