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Just about to head to hospital for mid treatment CT scan, blood tests tomorrow then round four of chemo on Wednesday.
This month was pretty bad at the start but the past couple of weeks were fine, although even still I feel a very slight queasiness in my tummy.
Psychologically I find things hard at times, more in a being worn down sort of way. I'm fed up taking medication, fed up having needles stuck in me and just tired of the whole situation. The good thing is I'm...
Had a tough day yesterday. Every time I go to visit mum I look forward to seeing her, and this time was no different. She's had a few weeks off treatment and I was hoping that she might get some respite and be feeling a bit brighter.
I was gutted when I arrived because she looked totally exhausted and within 5 minutes of us arriving, took herself off to bed. She had made lunch, but was too tired to stay up and didn't want to eat.
Colin filled us in on what's been happening. She's been having...
Hi everyone i am back at last!! My daughter has loaned me her laptop until mine is repaired, i did'nt realise how much i depended on it. I must admit i've not been having too good a time recently, although i have'nt been really poorly, i have had little niggles of stuff such as, muzzy headache, nasty taste in my mouth and niggly pain here and there and above all else, the feeling that the cancer is taking me over and i'm going to die!!!!!. It's not something i feel able to talk to my family about...
An arbitrary point to post an update on my new normal.
I was told neos can continue to improve for 2 years and last year I found that hard to believe as I felt everything had settled down. But in subtle ways, I have noticed changes. I no longer feel so uncomfortable when filling up - that may be improved abdominal muscles. It means I don't get quite so much notice of need to empty, but I'm learning to re-estimate. I'm less likely to leak unless at max capacity.
Nights have slowly improved...
Well, there's been some sun today and I had a long night, so things are brighter. We went to the Historic Dockyard in Portsmouth today to see the Mary Rose in its new museum - very impressive. We managed a floor of displays in detail but both of us decided to come back another time to do the rest justice.
I had to admit I was too tired to go shopping for our lunch, so sat in the car while my husband got it. I am very lucky that one of his favourite pastimes is food shopping, especially if...
Sorry I didn't realise some of you out there are new to internet house parties. These are the rules.
1. Party is organised. That's me tonight.
2. An album is agreed on for listening to. Difficult. Tonight I'm giving clues at the bottom.
3. Venue, Date and Time. Your bed or your couch. Tonight. 7pm-8pm.
4. Item of memorabilia is selected. Suggestions: Cut down trousers, scarves, anything tartan.
5. Refreshments selected. Your choice but no alcohol, cigarettes or non prescription drugs...
You know that box of vinyl records you donated to the charity shop, or sold at the boot fair for a few quid? Well I'm going to tell you a story this morning as it relates to the title of this blog. Brand New Me. The Jerry Butler song.
OK. Think about all the boxes of records you have chucked out over the years. The ones of all the artists that you had never heard of? Was it by any chance Keep On Pushin by The Impressions? It came out in 1964. There's 5 copies for sale on Amazon. Prices range...
I've got into the much anticipated spell without the cap tablets - joy! and wondering why I feel down. I've managed to get on more with 'life' since the arm and hand tingling disappeared but cannot quite adjust to the feeling of low energy. It was particularly cruel when we went to a National Trust property, Mottisfont in Hampshire. This was day 11. It was a lovely day, we had a short 'introductory' tour of the grounds, then lunch. I didn't have the energy for a wetlands walk (1 hr) and found...
Well I got my first recommendation for new music. It was the last thing I expected but I agreed to give anything a try and I'm so glad I did. You were so right, it's the best chill out music. It's on the radio now.
Today I am listening to Classic FM. I have no idea what actual piece of music is called but it doesn't matter. All that matters is that I've found more music that I like. Thanks!
Sometimes things seem so frustrating........no not seems.......they are.......
Andy went for his chemo today........and despite feeling really sick the hospital sent him home with the name of a tablet he needed to get from the GP.... who couldnt get it organised in time...
So now Andy has no medication and feels extremely nauseous......why can't the hospital just send him home with the medication that he needs so he doesnt have to suffer more than is already necessary.
Ever wanted to scream...
