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So it seems that Acinic Cell Carcinoma is flipping rare. I'm sure loads of cancers are really rare and this is my first foray to see what I can find about my cancer.
I have found a website that has lost of information about ACC - it can be found at:
http://www.aciniccell.org/index.html
What else? What else?
I know at some point over the next few days that my emotions are going to be all over the place. For now though I am thinking about the various actions I can take, what I need to tell...
After a hectic few days and nights the storm seems to be settling today. The symptoms have ranged from energy to lethargy, optimism to pessimism, sleeping well and not sleeping well at all.
By day, all was well until two days ago when the flow started to seize up. I was having both pain and frequency by day as well as night. Yet the symptoms were not quite like the unrinary infections I had some years ago. So I upped the fluid intake. Two nights ago was very difficult and I felt almost at retention...
So now back at home and at long, long last am pleased to report a daily improvement in my health (first time since back in early November!). Whilst not wanting to tempt fate the past two nights have seen better sleep patterns and although waking up with a sore throat I actually feel as though I am now officially on the mend after radiotherapy treatment. Not feeling as sick as much, seem to be a little more energetic, appetite coming back (as soon as pain has gone I will be getting food and drink...
H is improving daily. Great.
H's neck is half recovered. Great.
H's mouth ulcers are on the decline. Great.
Morphine dose slightly reduced. Great.
Awake during day more. Great.
Spots have gone. Great.
Four teaspoons of the blandest soup in the universe eaten. Great.
Laughing at own jokes again. Great.
Reading again. Great.
Weight is stable. Great.
BUT best of all ....................
I can kiss H on the lips once more.
A M A Z I N G, B R I L L I A N T and F L I P P I N G R E A...
Called mum first thing in the morning, my little niece is
there, so she sounds very cheerful. Still got fever and back pain. But with a
young child in the house, she feel life again. In comparison to Western world, Chinese
people have greater attachment to their family. It goes both ways. Not only
young people stay with their parents even after they got married, but also, the
older generation treating their grandchildren better than their own. They spoil
them as much as they can. Of course this create...
The 'wonder drug' finally arrived by courier van yesterday afternoon. Opened the pack and read the instructions. I am to take abiraterone on an empty stomach, not less than two hours after a meal and not less than one hour before eating. (!) My colleagues on the Prostate Cancer group know all this of course. Prednisolone too, a drug I have always hoped to avoid; now it's supposed to help me. So, as meals are variable in this house, I took it in the middle of last night. I have to get...
Life is so unpredictable, i think our attitude towards this will make the different.
I think no one ever imagin one day they would searching in this site for information and support. I never think i will end up in England, having my own family here. Thousands miles from where i grown up, having my first job, my first love and a world i have try to build. Sometime even with my husabnd beside me, or standing in my garden, i still feel it is so unreal. Never in a million years i could guessed my life...
