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Since my last post things are continuing to improve .... I am still on pain relief (paracetamol and ibuprofen) and my mouth is sore, but I re-introduced minty toothpaste earlier this week on the morning brush. I ate a beanburger which wasn't home made and there must have been some unexpected spices in there that irritated ..... it felt as though I had a huge ulcer at the back of my mouth (just behind my epiglottis) ...... Carrying on eating it was a very brave thing to do, but the next day I haven...
My PSA is steady at 2.9 on abiraterone and prednisolone but of course it could be lower. Days vary from fantastically well and active, (yesterday), to tired, wobbly as though drunk and weak legs, (today). I don't understand all this. The only constant is disturbed nights though length of time asleep does vary.
I know the mets are still there but nothing new has gone wrong recently. My urinary stream varies day to day and night to night although I take tamulosin regularly every morning. The oncology...
Well that was fun (not) taken though the hdc with stem cell transplant. A course of injections to boost my stem cells then a day of harvesting maybe two And then maybe my first cycle of hdc what unnerved me was if they think its worth it I may get another cycle and hopefully 3 Yikes ... First time i want more then one cycle of chemo
19/33 Tuesday 22 April: Weight 74.7 kilos. Had my usual weekly chat with Mitch. Told her about my niece’s new baby and my daughter expecting one in August. See, it’s not all about me. Everything ok with me, as far as I am concerned, although the tiredness each day when I get home is getting to me a little. No other major side effects except realising that, when I need to empty my bowels, I mustn’t delay. Also, I have found myself suddenly leaking into my tissue pad, without warning. A bit longer...
Just a short update today, as I'm not feeling too great. Had my 4th of 5 Mytomycin shots on Thursday, and started the 7th of 8 cycles of Capecitabine. My bloods must be fine, though I forgot to ask for the exact levels. The registrar I saw (yet another new one) said that I should have a scan after the last cycle of Cap and possibly before the last Myto. If the scan result is good, I may not even need that Myto. Timing is pretty tight though: I'm not sure when they are going to schedule the scan...
Well that didnt go to well on thursday i got a call from one of my consultants they had found the source for my afp rise i was informed it was a small nodule on my lung and it would just need surgery to remove it. Job done. Relief.for the first time in a year my wife and i thought this nightmare would be over. Just a ct scan to confirm it was ok to operate. So yesterday i had my scan and for the first time i waited with confidence.how wrong was I In walked my cinsultant.sorry but the scan show four...
My last post was end of 2013 and i promised me and any followers i would be more regular and i have not....sorry. This is therefore mammoth...sorry.
So where am I? Well it moves fast this disease so here goes...
At end of 2013 i was on my clinical trial at the excellent Sir Bobby Robson Unit (SRBU) at the Freeman hospital, Newcastle Upon Tyne with a paclitaxel (a type of chemotherapy) and mek inhibitor (a trial drug from Glaxo Smith Kline or GSK) combo designed to try and turn off the signals that...
