My PSA is steady at 2.9 on abiraterone and prednisolone but of course it could be lower. Days vary from fantastically well and active, (yesterday), to tired, wobbly as though drunk and weak legs, (today). I don't understand all this. The only constant is disturbed nights though length of time asleep does vary.
I know the mets are still there but nothing new has gone wrong recently. My urinary stream varies day to day and night to night although I take tamulosin regularly every morning. The oncology registrar's suggestion of taking tam twice a day did nothing for the stream but gave me headaches so I reverted to one a day. I tried a glass of sherry plus two each of ibuprofen 200 and paracetamol the evening before last and had a better night. I repeated this medication last evening with no good result. So what do I do?
Is this true remission? Or am I kidding myself and using the wrong terminology? The drama has gone, I don't need either crutches or pain relief by day and the last oncology doctor I spoke to last week was very reassuring. So I'm lucky. But I wish my legs were stronger and that I felt less giddy just walking into the village. It's a feeling not a fact as I don't fall over if my eyes are open and I can climb ladders in the garden without risk of falling off. Just carry on and keep taking the tablets!
