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So today mum has been offered to be part of a trial, either Neptune which is running now or a new one coming up called Javelin100.
I know it's a 50/50 if you get the new drugs or standard chemo. So appt next week at Clatterbridge with the nurses to discuss more detail, sign consent forms etc.
Needs CT PET scan first and sample going off to US!
I know a few on here are currently going through this so any advice would be really appreciated!
Mum looking at starting treatment end of July...
Hello,
It has been 5 months now since mum passed away, there has not been one day I haven't thought about her. So many things remind me of her, silly things like songs or seeing a pair of shoes she would of loved. Each day is a battle.
Little things I'm struggling with is like going to advice, mum helping me out making my decisions for me and helping me pick an outfit for events. Things that my friends can do with their mums. It's not the same taking your dad into town to try and find a dress...
Hello,
It is a shame that we are all here for a reason, and that we are here because something terrible has happened to us.
Well, where do I begin
It started two years ago when I was back in sixth form studying for my a-levels. Mum had a bad cough for a very long time, she decided she should go to the doctors just for a check up, didn't think much of it. Then she had some scans, results come back and they found a mass on bottom of her left lung- caner. The most horrific word. At the time it was the...
2 years ago my younger brother was diagnosed with gland cancer. It was in the very early stages so he had chemo, radiotherapy and surgery. It completely broke my heart but as a family we got through it together. I went to every appointment and was there by his side every step of the way. He is now recovering from surgery really well and is now 99% cancer free! Before we got this good news about a year ago, my dad was diagnosed with terminal stomach cancer. My whole world came crashing down. My dad...
“It’s the hottest day of the year,” dad used to say whenever he caught us with the gas fire on in summer. Whenever I say the words now, I hear him saying it.
I signed up for the Run For All Burnley 10K in November last year. I contemplated a ’30 in 30′ style list as I entered the final year of my 20s but when I could only list 5 or 6 things that I would realistically complete, I scrapped it. I settled on two challenges: run a 10K and use my 30th birthday to celebrate my...
Hello there
I felt it would help me personally if I started to write a little diary about my feelings.. I guess to share and offload! Im afraid its more 'JK Moaning' than 'JK Rowling' but hey ho!
So today I took my Pannie (my nickname for my better half, my love) to hospital locally to have his needle biopsy of a gland in lung.. maybe lymph gland? Anyway, took him in, and was warned he would be very sleepy and groggy afterwards when time to pick up.
So I went about my day...
I’m back, but where have I been?
I keep asking myself that question? What’s actually happened over the past month or so?
I know I blogged a few times in May, but truth is I don’t remember doing many of them. They’re my reminders as well as your updates.
They call the day you get your Stem Cells returned Day Zero. I understand the reasoning now (on day Plus Twenty).
It’s not only the first day of the rest of your ‘new’ life, but it’s also the start of something that they described...
After my initial infusion on Friday the temptation was to report straight away that everything had gone marvellously well and it was only a matter of time before I felt I could conquer Everest.
So I thought I'd give it a few days..........
The Oxaliplatin infusion went very well. I had some slight nausea but the tablets I was given beforehand kicked in and it was fine. I have been experiencing some peripheral neuropathy (pins and needles) in my fingers and still have a strange sensation where they...
Mum has just been told that her cancer has returned! In Oct 2012 she had a right lobectomy for stage 1b adenocarcinoma. The Drs didn't think she needed any follow up chemo.
Now May 2016 the cancer has recurred and spread to the pleura. Stage 4. She's been told only option in chemotherapy and maybe a clinical trial. She is going to see her oncologist on Friday at Clatterbridge and then we will find out options. She is not positive for EGFR or ALK mutation.
Has anybody been in the same...
1. There are 2.5 million people living with cancer in the UK.
The number is surprising, overwhelming...
One lady describes her cancer ward as "like an airport" - "It’s amazing what goes on here. You do not realise. It's like when you go to the airport, you don’t realise there’s people going everyday, buzzing here, flying there. These places are going on all the time."
2. Everyone remembers the day cancer became their "new normal”.
"Cancer", "the...
