Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
Unsure how to get started? Take a look at our help pages on blogs.
My 16 week journey using Aldara cream for the treatment of VIN3 starts here. It is 3 days since I got my diagnosis, and tonight will be my 2nd application of the cream.
since my dad finished his first round of chemo he has been very dizzy and his legs go into spasms as if he is taking a fit, he is very forgetful now and not eating much or drinking much. it is getting scary now . we moved dad in to our house as he lived alone but i must admit i am getting frightened and dont know if i can be any good at this. when i wake in the morning i lie in bed and listen to see if he is up and about. he has fell twice since his leg started shaking and he has to hold on to the...
I suppose it's all over though I'm still a bit concerned. The scarring has a small area of lumpy swelling which I hope isn't any kind of infection, but I'm keeping an eye on it as much as I can trying to look at bits of me that are are hard to see!
I'll be off-forum for a while as I have a (non-cancer) op next week; if nothing else the nurses should spot anything unusual since general anaesthetic ops seem to come with a free catheter. Ho hum, at least it's only one lot of worries...
So the 3rd round is on it's way and we survived the weekend. He's not been taking the multi-vitamin (because of folic acid) and his 'tingling' fingers and feet have been less severe than previous. Is there a vitamin on the market that doesn't contain the stuff? Might have to ask at the welly boot shop.
Eating is still an effort but weight is being maintained. Scrambled egg with some tinned spaghetti was last nights choice. A Calshake a day is doing no harm. Seems that the steroid...
Wow, it's been over a month since I last blogged. So what's happened since mum came home?
She lost a lot of muscle in her lower body so she's starting walking to try and rebuild her glutes/calves/quads etc. She's up to the "2 lake" walk with the dog now which is pretty impressive considering she could barely get up the stairs a month ago.
Mum decided to throw herself into things when she got home. I think it has been a "getting control back" exercise after what she's been...
Now into fourth week of treatment and to put it bluntly, I feel really F**ked.
I wish they had made a point of making me aware of the severity of the side effects at the outset.
I might have prepared my self a bit better.
I can understand why there is a high drop out rate.
This is by way of a warning to anyone who is about under go this treatment.
YOU CAN GET THROUGH IT.
But you have to be prepared and don't try and do it alone.
I am lucky in the respect that I was basically fit...
Dad hasn't eaten for five days now. He is only having drinks. He's got a syringe driver and he is only accepting pain relief. he doesn't want anything which will prolong his life.
It's heartbreaking to see him like this and I have to fight back tears every time i say goodbye to him. he just wants to be with Mam now and I wish there was a way we could help him.
As the last post said, I felt pretty down last week. I felt better nearer the end of the week and feel back to my old self now.
I do think being off for so long will be difficult though, but I have gone to a tai chi class which I enjoyed and will attend that as often as I feel fit enough and obviously at the right end of the month due to low immune system etc.
As for how I feel physically I feel very well, back to, if I didn't know I had this condition...
The perils of getting too smug, of thinking maybe you're getting somewhere, maybe moving forwards......
Just when I was thinking, Hey, I've achieved a fair bit and maybe there is a reason to plod on..... just when I think I can do this living on my own bit, and I'm going to give things a go, and I'm pretty amazing........ And look at all the stuff I've done so far (though I wonder how), and it really is different from a few months ago etc etc.....
So, today, a lunch with some...
