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I've not been feeling up to much these last couple of days, fatigue is catching me and the side effects build.
The very tip of my tongue is burned. Its bloody agony at times, I have pain relief now and some new magic gel which the chemist will have tomorrow morning - these things should help. Thrush too, a common effect of the radio which I have stuff for too. These mean that, right now, I don't like talking. It hurts my tongue and the horrid thick saliva makes me harder to understand.
It's eleven weeks today since Mam passed away and seven weeks this Thursday for Dad. Sometimes I feel ok and other times i cry at the smallest of things. The other day I started to get upset over a straw because in his last few weeks dad had to drink through a straw.
Today is my son's birthday and I got teary over the fact that he'll never get a card off them again. Mam used to ring everyone on their birthday to wish them happy birthday.Went to work yesterday and they were all talking about...
I was up at 02.30hrs, sleep decided to elude me last night, constant worries about what today will bring, Wondering whether or not the chemo will even happen as the tumour is pressing on the superior vena cava again making mums face swell and making her short of breath and rattly. they only redused the steroids last week and already its causing issues.
Well D-Day has arrived today. Everyone on route to the hospital by 6.30 am ready for an 8 am start. At the hospital mums settled and a canula placed...
16th May 2013
Yesterday we went to see dad at the cemetary ready for fathers day and I noticed something I wasnt keen on. My Mum was recentley hospitalised with SVC compression this is when they found the cancer. after nearly two weeks on nebulisers back to back and continued oxygen ,mega doses of steriods and bronchodilators mum was well enough to come home. Yesterday my sister and I noticed mum was making a gurgling sound and was a bit breathless. Today we noticed a swelling on her left side just...
After some flu like symptoms after the New Year and swollen neck glands which didn't really respond to the anti biotics, I found myself in front of the Doctor being told serious but not life threatening, but you have CLL. Please go to the Haematology clinic. In a state of shock and having searched and read all I could I went to the clinic in January and saw an intern who confirmed diagnosis and said come back in 6 months.
The six months are up and I go back at the end of June for blood tests...
Another weekend, yay. A couple more days free of treatment when I can get back to feeling more normal. Well a bit, anyway.
Today was a day of being mucked about really, clinic was running behind this morning (by about 45 mins too) and then radio was moved to this evening - the machine needed something doing to it, not sure what. At least there was no waiting tonight, which was better than hanging around for over an hour after the clinic to see if they could slot me in, as it were.
I'm now on the...
Wow...so I feel pretty drained this week. Dad has started on his erlotinib (tarceva)...him and mum went away last weekend just shortly after he had started taking them. It sounded like they had a lovely weekend away...everytime I spoke to Dad he sounded relaxed and happy. And so did mum...I think the break has done her the world of good too. Dad's appetite hasn't been great but when they were away he had a fry up every morning (his favourite so long as the bacon is burnt to a crisp!)...
So it's been another gap since my last post. I suppose that's a good thing really because it means that less has happened, fewer dramas, which can only be a good thing.
There are some things to offload though, so here goes.
Mum finished her first round of treatment just over a week ago. 6 weeks of daily radiotherapy and chemo (in pill format) all done and dusted. Initially she seemed to cope very well, but once the halfway stage passed, the cumulative effect seemed to kick in and she got...
