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Well on my last blog things were going great but as we all know this terrible disease can change things fast. My pops took poorly and is in alot of pain, ive had the doctor out who upped his morphine so pops sleeping alot at the moment. When hes awake he is very angry and short tempered which isnt him at all and it shows how frustrated he really is. We had a good talk and he finally admitted to me that he isnt so strong hes absolutley petrified of dying. It hurt me because i just didnt know what...
This is not going to be happy or uplifting, informative of even useful but a self-centered piece of rambling - but sorrry I need to write this down.
I know how lucky I have been so far and that what I have been through is for my own good but it has ground me down. I apoligise to all of you who are in far worse situations than me I don't mean to belittle the enormity of what you have faced I can't imagine how some of you have coped. But right now I feel at rock bottom - sorry.
This time...
Well at least the doctor doing the utrasound knew what he was doing today! I am now convinced that when I had one in Feb (after 48 hours as an inpatient for speed!) that they guy doing it wasn't interested. My signs and symptons are exactly the same, and he sent me out saying I was wasting his time, but as it was a new experience for me I couldn't argue. Today was so different, and the doctors and nurses so considerate while they drained put 6.5 ltrs of liquid from me that I was very relieved...
Hi Guys,
Well it has been a year since this awful disease arrived in my life and i have just found the strength to read through my original blogs and forums from that time.
It has been 5 months 1 week and 5 days since my dad passed away and it feels like years and just minutes all at the same time.
So anyway i have realised through reading through my past ramblings what a huge support you all were to me last christmas and indeed in the 12 months since.
I hope i did everything in my power to make...
So, I battled through the snow today (6 hour round trip) to get the results of my colonscopy. They showed no sign of carcinoid in the caecum. So I've got to go back and have the ocreotide scan again and then probably my ovary and appendix removed. Not quite what I was hoping for, but reading some of the other posts I guess I should be feeling happy.
Merry Christmas Everyone x x x x
Hi All
Feeling a little guilt after my good news i was so happy and shared it with the world and his wife about my treatment finishing on christmas eve .
But after any high there is a low
Its now that i feel guilty because i know that there are people who are dreading this season ,people who will feel so alone in a room full of family and friends because a special someone isn't there ,for the ones who will wake up in an empty house with a empty heart ,for the ones who will be caring for a love...
I cannot beleive although people have told me how poor the care from NHS and cancer services can be and how much you have to fight for a bit of dignity.
Yesterday I had a 20 minutes non-conversation with a speicialist worker in a specialist cancer hospital with her telling me how many calls they had - I pointed out I wasn't interested in her workload but they had promise dsomeone would call round and this hadn't happened and wasn't going to according to her - but they hadn't bothered telling us...
