my story so far, scary but happy.

  • I'm home

    FormerMember
    FormerMember
    They let me come home today. I'm so happy to be here. They told me yesterday morning that they weren't sure about the toxoplasmosis. They don't think its cancer but they still don't know. My neurological symptoms are back. I have to get a blood test to see if it is the toxoplasmosis or cat scratch fever. If not we're back to clueless... Back to testing. I can handle that. Its ok really. It sucked at first to have the…
  • I almost died part II

    FormerMember
    FormerMember
    I'm doing much better. I'm down to 2 tubes now. An IV, to keep my central line from clotting as only 1 of the 2 tubes are working, and my wound vac. I've learned a little more about my first day here. There's a rumor that I coded after surgery but I haven't seen my chart yet. I know I lost consciousness in the ER because my blood pressure dropped so they had to wait 3 hrs before they could get my bp high enough for surgery…
  • i almost died

    FormerMember
    FormerMember
    I had my simple lymph node removal and biopsy friday. Because my immune system sucks from this mystery illness/cancer I got a rare and aggressive bacterial infection. Within 24 hours I was in the ER with a rash all over my upper body that looked like a sunburn and a fever of 102. The opened the incision and found a decent amount of necrosis so they rushed me to the OR. The cut out all the dead tissue and packed it with…
  • think ink!

    FormerMember
    FormerMember
    First off, thank you guys SO much for the support! I wasn't sure if I should even be here since they haven't figured it out. Since my last post a lot has happened. to sum it all up I had a radiologist tell me that it wasn't lymphoma or leukemia and then my doc said it was still a possibility but maybe not as big. Then I was told that I have a tiny cystlike thing in my thyroid that they're going to biopsy soon as well…
  • my story, because i need to tell it

    FormerMember
    FormerMember
    I'm sure its nothing special but I'm one of those people who is there for everyone else and can't go to someone with their stresses because I'm too busy trying to keep everyone calm and happy. I just needed to tell someone what its been like for me. Earlier this year I got a divorce from a terrible marriage and became the happiest independant woman ever. I'm 22 and love my life and everything in it, good and bad. After…