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Well I’ve not been here for a while - I haven’t felt well for a couple of days, nothing specific but all I could think about was the extreme tiredness. Well today the ambulance got called, reluctantly on my part but necessary (my husband is nearly always right when it comes to my medical care) - I was so worried something was wrong with my heart, I had chest pains, no breath, dizzy and am awful sense of foreboding. So where is it up to now, I am waiting for a CT scan as they suspect a pulmonary...
Hi my partner was diagnised in Nov with stomach and oesophagas cancer at the junction. We married on 24th Nov and had a beautiful day.
He is very depressed and im trying everything to keep home as normal. He has has 2 months chemo and now hopefully it has shrunk enough ready for total stomach removal. However his discomfort is a lot worse and he is worried it has spread further yet he wont speak to the hosp about this, he has a scan today and will know by next monday.
I wish he would talk...
Up and down is how I feel. Yesterday, I re-read the Eulogy I've written for her funeral next Monday and blubbed. I forced myself to do my first 'outing' on my own - just to a small exhibition. I felt predictably lonely but unpredictably jealous of all the couples. I played a board game with our two kids (20s) and their partners and we had a great time - laughing, whooping and hollering. Yesterday was the first day that no-one visited or rang to see how we are. Yesterday was when I realised...
Blog number 2. I realised today how angry and upset I came across yesterday and it’s not that I am not, it’s that sometimes I find things difficult. I find the mornings the worst and by the afternoon I’m usually ok. I’m trying to realise that I’m still me and that cancer is just a small part of me. I need to learn to cope with going out. I feel self conscious because of the no hair thing but was out for most of yesterday and part of today. I think as I have been severely neutropenic because of intensive...
Hello! I am 69 years old, an older dancer and live in Tottenham, London.
This blog is based on my experiences during my cancer journey which began early in 2017. It is influenced by Lewis Carroll's "Alice in Wonderland". Just as Alice visited a place where she met unexpected challenges, the known and unknown became "curiouser and curiouser", I experienced my "Adventures in Cancerland" in similar ways. It is my journey recording ways I remained positive, adaptable and took life as I found it each...
I am 1 in 10 million. A bearer (just about) of PCNSL- primary central nervous system lymphoma- lymphoma of the brain in other words. I am 43 years old and a mum of 2 girls, a nearly 10year old and an 8year old. It’s not bloody easy having cancer, I hate it infact. I’ve tried to be calm and positive but it’s not doing it for me. I’m angry and just a bit pissed off. How do I achieve the zen like calm that others have? Answers on a postcard please
...well, Happy New Year!
I had a great Christmas, and the wonderful trip to New York and Washington D.C. that my wife got me when I was diagnosed as something to look forward to was AMAZING. That is, until the very last day, when my phone rang at 07:30 local time and my oncologists secretary asked me if I could go in, that day.
We agreed I would call on my return to the UK, I was flying home that night anyway. I called when I got home and got an appointment for this Monday, but the...
I know I’m a few days late but Happy New Year. I can’t say I’m sad to see the back of 2017. It was probably one of the most traumatic years of my life.
And I suppose now is as good a time as any to reflect on the year as a whole. It didn’t start too well when I was admitted to hospital on New Year’s Day with an infected PICC line. The first of a number of stays in hospital. Next came my bowel surgery, the removal of my entire large colon, my anus and rectum. Drastic and life changing...
Signed up for Optima trial today. Also given date for chemotherapy to start on 5 February in case I am in the control group or the Prosigna test indicates high risk. I will have radiotherapy and hormone treatment as well. I should know by 29 January whether I definitely having chemo or not.
