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I haven't been on for a few weeks because my dad died on 4th July.
5 weeks ago tonight my mum was called in by the doctor to say that my dad had fluid on his lungs and around his heart and that he wasn't likely to last the weekend. Luckily he got through the weekend and we managed to get him moved to Ty Olwen Hospice on the Tuesday. He was there nearly a week. I can't say enough about the amazing staff at the Hospice. They made my dad's last few days really comfortable and made my mum...
after meeting my wifes friend at hospital 2 days ago i had to smile when thinking back to comments i made on line concerning stupid things people say. we explained i have myeloma which she had not heard of [ why should she ] and that i was on chemo . from her lips came you look so well are you always red faced. so much runs through your mind ,look inside me i have punch holes through my femurs , skull and several ribs also a nice scar up my back where they collapsed my lung and removed my front 4th...
Realising that vitamin D levels could be an outcome indicator, led me into the world of prognostic...
Ok deep breath and type slowly...in.. out.... aaaahhhh, sniff the pheromones (trying not to kill Shaz and Madge with exhaustion!)
So, you know I am a nutter by now and I know and despite being asked to join mensa as a child, I am really really stupid when it comes to me and me being superwoman/ etc and live on stupid cloud cookoo land when it comes to health and thinking I can do anything etc...and my brain makes really stupid assumptions.....so sometimes I need a slap and a reality check to actually get...
I fynd fings getting harder and harder
Why is lyf so unfayr?
I feel lyk my hart is herting mor eech day an i don no how too mayk it stop
I feel lyk I hav fayled every1 bcoz i am no betta... i fink fings r worse than eva
I'm sorry
I onlee cry wen it herts... it feels lyk all the tym.
xxx
I am doing ok and getting energy levels back.Am having a break off site for a while as it can effect me emotionally and is no good for my well being.My way of coping.Be back in a few weeks time we hope as coming up 1 year since diagnosis.
Some bits of this I have just put on the warped sense of humour thread but can't remember what i did and didn't and warned them I repeat myself cos I can't remember stuff any more and seem to have 2 different sets of people so doesn't matter I guess.... OH SHUT UP and get on with it! Sorry.... just seen nannyb has joined us over there on the dark side hooray!! anyway, back to blog...
Woke up feeling happy today and silly... I think the comments and you lot help a huge amount on that...
Surgery done, back at end of April, not too painful, happy to see end of illestomy, not that it was that awful as you eventually get into a routine so daily management becomes automatic. The hard part is re-starting the digestive system, 3 days of absolue hell in hospital from projective vomitting to chronic diaorreah ...So several months on , re-started back at work, but body balance and toiltery issues persist. Following a limited diet as advised by Stoma nurses, no fruit, vegetables (unless root...
