Blogging can be a great way to journal your experiences and share with others. Why not create your own cancer journey blog, or have a read of other blogs created by our members?
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Haven't been on here for a while have been having a bit of a rubbish time, became incontinent due to the tumour in my pelvis wrecking my bladder, which really brought me down. Have had some really bad pain episodes as my tumour started to die and take bits of my insides with it, but at least now it is not visible on scans. They won't say its gone but it's not visible so I hope it is dead, my chemo tablets continue to shrink my lung mets and the side effects have been manageable, I now have lovely...
-But I'm still rolling along.
Saw my urologist today for a routine update. But I have been much worse with pain the last 24 hrs. Told him all my symptoms and finished up on the couch for an examination, -not PR fortunately.
I have a painful left hip, a very weak left leg that won't bear weight and a tender liver edge. Sent straight off for hip/pelvic xrays and blood tests. My urologist came and talked over the Xray results as he was on his way to operate in the same hospital
The urologist...
I cannot believe it will be 4 weeks tomorrow since we lost Dad. It still does not feel real...I still feel like he has gone away somewhere and he will come back. I feel like there MUST be an ending to this horrific pain...the empty, sick feeling to my stomach...but then I realise that he is completely gone...I will never ever speak to him again...I will never ever get into a fit of giggles with him again...I will never see his amazing face again and his eyes sparkle. Dad was one of those people who...
in early summer I bought 2 Groupon offers which would have taken us to Monmouth for a couple of days b n b, then to Wroxeter near Shrewsbury for another 2 days b n b plus a Roman banquet. (I did this last year with my lovely brother and it was wonderful ) I stupidly expected/ hoped that my husband would be reasonably fit and able to at least walk a bit and enjoy the short break as a diversion.
Sadly he isn't well at all and staying in bed all the time , terribly fatigued and in intermittent awful...
I cannot believe it is nearly 1 year.. it's creeping closer. The dates leading up to you leaving, they're here. I miss you, of course I do. I am sad that you won't see me get married in 3 weeks. I love you though. You will be there with us, just not in person.
Hi
I have decided to write a blog to share my experiences and feelings on having to deal with someone close being diagnosed with Cancer. I hopefully want to help others deal with situations they face or get advice on ways I can deal with my situation.
Just to get you up to speed, in August 2011 my mum had an operation to remove her Kidney due to Cancer. In May 2012 we had the devasting news that the Cancer had returned in her lungs and unfortunately their was nothing they could do for her, no treatment...
It's a month since I posted anything but life goes on. I'm on 3-monthly injections of Decapeptyl, -standard treatment for secondaries I understand. Symptoms are up and down with corresponding moods. I'm told that this is normal for anti-hormone treatment and I'd better get used to it.
On the positive side I have few hot flushes, mostly at night and they are mild, not real soakers! My weight and appetite are the same and the old brain still works quite well in conversation and doing...
had my p s a yesterday (plus that bleedin flu jab) but the improvement with waterworks has come to a full stop with another water infection so now got to have further investigations (biopsy etc) and an m r i scan tomorrow. follow that with another appointment with Mr Konerue (my specialist) next monday so it looks as if they are trying to get me sorted. only downside is it could take up to 18 weeks before i get the biopsy etc, suppose it depends on what my p s a results are.
will keep you posted...
So its been about 3 weeks since my last post, Mum was/is doing really well and was having so many good days that they decided to reduce the Midazolam to try to get her off of it. That went well for a few days, until she got down to 7.5mg and then she started sleeping a lot more (which we were expecting because of the phenytoin that they started her on again), but the amount of seizures also increased so I suggested the nurses increase it again slightly, and they agreed.
She's now gone into a very demanding...
hi all
so today is sunday and i am feeling a bit tired today. had to have an afternoon nap. i had a few days ago a sore in my mouth no big deal. today i performed some blood tests. i have very high levels of GGT which is really disturbing. GGT shows problems in the liver. i have to talk to my doc about this. WBC looking good, this is because of the vitamin D i am taking, and RBC looking good too, lower than before chemo but still in the range.
will update soon.
next chemo on the 20'th of octo...
