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I must have been searching for ages , all i wanted to do was add an update to my blog.....how long can it take...... how emotional am i feeling right now.....must have something to do with it. sometimes the easiest things are the hardest especially when your eyes are filled with something that resembles tears but yet there is nothing to cry about ( no i am not pre menstrual, had that last week ) i think this is all to do with this bloody disease. I will try to explain what has happened this week...
Hi there you lot. The first bit might sound like a moan but its really not and I am still grinning like a loony, just a bit of a mixed up loony... (what's new you say... yeah I know) but my head is spinning a bit (understatement of the year there... surprised I am not suffering from G force or warp 9 or whatever)
Well, I feel like I have been hit across the face with a cricket bat. In a good way, but am now reeling. I guess I have been locked up in a cupboard for ages and ages and it feels like...
7 months on since my lovely mum died suddenly and unexpectedly (for the family anyway). I still feel so angry with the NHS services. My mum died on a ward within the same hospital trust that I work for. I know how things work. I feel like she was stolen from me. I feel like they didnt work hard enough for her. I feel like they got it wrong....I dont think they knew how aggressive her cancer was.....either that or they were too chicken to say it. Im not sure what to do. Shall I pursue or shall I not...
Unfortunately Mo wasn't the only person to have a bad day today,I did. Needed some shopping today so I went to my local supermarket, Morrisons to get what I wanted, wont bother you with the details,just 'bits'. This was the first time since Mo's diagnosis I had been to the supermarket, I have been using my local shop only 5 minutes up the road,by car, how lazy lol. I got to Morrisons but as soon as I had walked through the entrance the feeling of depression and sadness descended like...
Hi! I can't believe how much time has passed since i last posted here. Well dunno where to start but I'll summarise for now.
I finished chemo (6 cycles) July 22. I was told (twice) by my MDT that radio wouldn't be necessary. Hmmmm, that didn't sound right to me. After everything I had read about RMS (rhabdomyosarcoma) chemo was almost definately followed up by RT. I have taken everything the docs have said with a pinch of salt and i did on this occasion too. I was right, and they offered...
I visited John's grave today for the first time since the funeral on Monday. It's only been five days but most of the flowers were flattened and blemished from the rain and nibbled by slugs. However, my simple sheaf of Arum Lilies were almost perfect and, maybe I'm being silly, but I took it as a sign that our love goes on. We'd arranged for a simple vase to be sunk into the ground and I placed a dozen red roses in it for my darling man - I hope they stay as fresh as the lilies.
...hi folks,
I honestly haven't got a clue what i'm going on about in this one, so bare with me. well i had my chemo 8 days ago, the first 4 days i've decided to bury in the deepest darkest pit of my mind,never to be opened (yes it was that bad).
So 2 intravenous injections followed by 21days of tablets,(to be repeated nonstop til feb 2012), and this is the strange part.
DAY 2- no pain at all, now considering that you could set the speaking clock to within 10 seconds of me needing pain...
I just wanted to see it in writing what a "normal" week we have had, well just over a week......
It started last Friday 2nd Sept, it was our old friends funeral.....actually a day of celebration as lots of people came, people that we have known for over 35yrs.......don't need to explain about funerals and meeting up with long lost friends. We hadn't been to a funeral since the death of Daves brother just before his diagnosis so were both a bit apprehensive, me more so as it always brings...
Mo had a bad day today even though she slept all night from 9.30pm-6.30pm without getting up she woke up with pain in her head,belly and legs,bless! She had her meds this morning,9 tablets all told same as every morning after a piece of toast,not a lot for brkfast. After her meds she usually has a rest for an hour or two then I help her get washed & dressed. Today though she spent the rest of the day until 2-2.30ish in bed which is unusual for her. The only reason she got up was because her son...
Lurched out of bed at 5.40am, managed to get one 6 yr old and two 13 yr olds out of the house by 6.40 in time to get on a bus at 6.50, all excitedly off to legoland.
Back to bed then for me til 9.30, then lay on sofa drinking tea. Managed to get my glad rags on in time to meet my friend L for lunch... baguettes and chips yumyum! Then we drifted about the village and peered into various shops, and then I found what I have been after for weeks - a mac. LOL! I have winter coat, wool coats, cardigans...
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