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Rang the St Michaels hospice helpline this morning didn'y go well.I was trying to arrange for someone to come to the bungalow & give Mo a wash,probably hasnt had a 'proper' wash in a week,she tries but its hard.Hopefully they could wash her hair also as i was worried about doing it myself because of the biopsy scarring.The person i spoke to,whether it was intentional or not,said something along the lines about the service only being available to 'end of life' patients.You have to be aware,Mo was...
New to site & looking for as much info/similar experiences/suggestions. Family member diagnosed 6 weeks ago with grade 4 kidney cancer. He is 70, has high blood pressure (controlled by medication), a pacemaker to regulate his atrial fibrilation. Had one cancerous kidney removed 15 years ago (without complications or need of any other treatment/medication) and subsequently had yearly checks for a period of 10 years where no further sign of cancer appeared.
However, at Easter of this year he...
That is all I have done today. Well, not literally, otherwise I would be sat here having not got dressed or gone to work or eaten or used the loo... :) AND, I have been on tenterhooks until could get onto my laptop this evening and see what LM's results were - PHEW!! (HUGS LM TIGHTLY)
But yes, yawning took up a large amount of my time. So, why stay in work I hear you cry? I asked myself that and the response was, they are giving you 3 days off a fortnight so TRY to go in when you can to...
I have not had a bad day. In fact i have felt quite normal at times. I am trying to stay positive.
However, there are times in the day when I just feel alone. Even in a room full of people and family - I am in my own world - I have to deal with this and my thoughts.
I think the gap between being told there might be a problem and when you go to see someone seems like forever. This is a kind of limbo - not that I intend on doing the limbo - I am not that flexible anymore!
So I stay here in limbo...
Nige been out 3 weeks now !!! He doing really well white cell count normal platletts over a hundred !!! :) x Line was removed on Wednsday he said it hurt more coming out than going in but is all ok !!!
just waiting for the 3 month scan to see if stem cell has worked already over a month post stem cell so not much longer to wait now :) x
love to all
Maxine xxxxx
My mum asked me a strange question yesterday "Did I want to marry Mo?".I told her that it wasn't what I wanted and not on my priority list,Mo is my priority even more so now.I didn't want to be one of those people who have just found out their girlfriend or partner has a terminal illness and thinks "I know what i'll do we will get married" regardless of how many years they have already been together and its never been a issue.No, thats not how Mo & I roll we wouldnt want to get married as the ultimate...
Yesterday evening Mo became very tearful and emotional,never seen her like that til now.Normally she is so strong,she will have a good grizzle clocking up the tissues/kitchen twl usage then stop & then its all over.Nothing worse than sitting in another room watching tv, doing normal things & then suddenly hearing someone you love so much crying their eyes out.of course you go in and give them a big hug and a kiss,and then you ask them why they are crying but they are unable to tell you why.Occasionally...
Mo had some visitors today firstly my mum came around this morning to see her and bought us lunch.Mo fancied a burger today so I went to the grill takeaway just up the road from our home.Mo thoroughly enjoyed her burger & fries she got in a bit of a mess but 'what the heck'.Its good to see her eat well and be normal...momentarily! Later on her best friend Carol, for over 35 years visited late afternoon,this was a 'biggy'as it was the first time she had seen Mo since we told her about the cancer but...
Heard from St Michaels hospice today at last!! they are coming up tomorrow afternoon to see what services they can offer Mo & myself.The Oncology Dept at the Conquest also contacted me today and we are due to see her,I think its a her,Dr Sadler,on Monday morning at 10am.Luckily there was a cancellation otherwise Mo would of had to wait a further two weeks for an appointment and time is of the essence especially with Mo's incurable cancer.
Its 2.30 am Mo got up to go to the toilet,not a major problem pretty normal for ev1,get up,have a pee then back to bed,no probs except when you have a tumour.The simple task of going to the toilet sets you,the carer, on alert & immediately you wake up."What's he/she doing,where are you going?"you ask them but they don't even know themselves "Why!" they can't even give you an answer not even a straight one,its upsetting.Then if by any chance you don't hear or feel them getting up and you look in the...
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