Crikey! It's now September. My last post was back in April some time!

Less than one minute read time.

FormerMember

10 Sep 2011

Hi! I can't believe how much time has passed since i last posted here. Well dunno where to start but I'll summarise for now.

I finished chemo (6 cycles) July 22. I was told (twice) by my MDT that radio wouldn't be necessary. Hmmmm, that didn't sound right to me. After everything I had read about RMS (rhabdomyosarcoma) chemo was almost definately followed up by RT. I have taken everything the docs have said with a pinch of salt and i did on this occasion too. I was right, and they offered me RT. 30 fractions over 6 weeks. I'm now more than halfway through with 11 fractions to go. It's going okay apart from the 5 hr round trip to london each day, for a 5 min zap. But, I'm extremely grateful for all the help given to me at RMH. I have a review in two weeks as to how things are going. My eyebrows and eyelashes have grown back. Just waiting for the hair on my head to make an appearance. There's a very fine covering of 'fluff' but not enough to stop wearing headscarves, and a beenie at bedtime ;D

FormerMember over 13 years ago

Hi Mei,

I thought you ran off and joined the Circus. But its good that your back, and things are going well. Look after yourself.

Take care and be safe Big Hugs Love Sarsfield.xx
- Cancel
- Up 0 Down
- Reply
- More
- Cancel
FormerMember over 13 years ago

Hi Mei, that's some journey every day for you, but, like you say it's all worth it!

Hope your review goes well and the treatment is working as it should.

Best wishes, Christine xx
- Cancel
- Up 0 Down
- Reply
- More
- Cancel
FormerMember over 13 years ago

Hey Sarsfield! hehe! yeah, i did consider it! Great to hear from you again :)

big big hugs to you too

Mei xxx
- Cancel
- Up 0 Down
- Reply
- More
- Cancel
FormerMember over 13 years ago

Thank you Christine! had a real low day today. In fact I've been in my jim-jams since last night, lol! yeah, the journey's exhausting but bearable. I'm loving the 'dumb things people say' topic on here. Kept me busy for a couple of hours reading the entire thread.

Thank you for your kind wishes, by the way.

Big hugs, mei xxx
- Cancel
- Up 0 Down
- Reply
- More
- Cancel
FormerMember over 13 years ago

Hi Mei,

I have only just seen your post and had been wondering what you were up to. Doesn't sound like a barrel of laughs but I am sure it will all be worth it. You sound quite upbeat and that is a good thing.

Best of luck for the review,

Take care,

Love lizzie xx
- Cancel
- Up 0 Down
- Reply
- More
- Cancel