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Following breast cancer and radiotherapy started on Tamoxifen Jan 2010. Since then had kidney cancer and had radical nephrectomy August 2011. Tamoxifen treatment driving me nuts as so many hot flushes and night sweats. Finding it all very debilitating and tiring. Any suggestions on coping mechanisms.....? Bloody sweats worse than the cancer symptoms!
have been thinking alot lately about my tolerance towards other people, i feel bad coz every time someone talks to me about some problem or how bad they have it right now i just switch off. does this make me a bad person? i do listen but i just cant help but think "you have no idea how good you have it compaired to me" i just dont wanna listen to trivial s**t. i just think some times people dont think some times when they come to me and moan as they have no idea just how bad it is for the hundreds...
I am aged 66 and suffer from Parkinsons Disease, Heart Failure and Diabetes. I take 24 tablets a day including vital Levadopa to control my Parkinsons.
I have just been diagnosed with a Carcinoid Tumour and an 'area of concern' in my liver and was asked complete a 24 hour urine test for the Multi Disiplinary Team this week so that they can plan my treatment. Imagine my dilemma when I found that I must avoid Levadopa for 72 hours. This is not possible, dangerous and can be life threatening...
I spent 10days in Belfast which was spent relaxing with my wonderful fiance....... We went to the zoo, to Stormont, visited the Giants Causeway, drove down the A2 to Glenariff waterfalls (stunning by the way). And slept lots!
I came back and found mum had a virus which had wiped her out for about 5 days she's kinda back on her feet now but only just.
I went to the Dr before I went away and I know I mentioned in a few of my blogs lately i'm just exhausted all the time, me thinking it had to...
For a change I went to visit Mo in the afternoon normally I visit in the mornings only because Ewa was working in the afternoons over the weekend. We try and work it as best we can so at least somebody's with Mo on and off all day,well for at least 3-4 hours each time at least. The nursing staff at the hospice do a brilliant job when were not there which makes things a little easier for us all. I turned up today and there were people everywhere,a big marquee set up in the grounds and even a doughnut...
I went to see Mo today didn't see her yesterday,she sort of recognised me but she was very sleepy due to the increase in the morphine dosage in the syringe driver. The nurses increased the morphine dosage as Mo's tumour was giving her a lot of pain,to the extent Mo at times laid on her side,a rarity,normally sleeps on her back and she was very tearful,Bless her!!. Thankfully with the increase the pain abated and she was comfortable again which was good,the down side to the increase meant Mo was even...
Didn't visit Mo today,a first,I just needed some 'time out'so I went over to Rye market with my mum. We had a nice morning considering the weather was crap,had a bit of lunch came back home and watched a bit of tv with my mum. I dropped her back home and had a lay down as I had a headache. All in all I had a nice day,but I couldn't stop thinking about Mo on and off all day I guess it was only natural. I found it very hard NOT to visit Mo today,but I have rung twice so far and will ring again later...
I had visited Mo earlier on today but I popped back at 7pm to drop off some clean nightshirts and some special supplemented fruit juices,fortijuice.full of vitamins and stuff.Katy the Macmillan nurse had ordered them for me when Mo wasn't eating,unfortunately they had turned up the day after Mo was admitted to the Hospice.I parked outside in the Hospice car park and rang through to the nurses station just to make sure Michael,Mo's younger son wasn't still visiting.Unfortunately me and him don't get...
