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he dont seem to be getting any better any antibiotics etc he getting for blood infection dont seem to be working he is like a skeleton now,and is still lossing weight,i would just like for some1 who knows about this to tell me what the out come is like as no1 seems to want to tell me,(im not nieve) im 32 an iv watched 2 ppl die from cancer,so i know a little bit but not that much,its just so hard watching my dad everyday trying to live through this an its come to the point where we dont have anything...
This afternoon we scattered Grandma's ashes. The sun came out and I knew she did that for us. She didn't like the rain. There were me, my Mum, my Dad, my Aunt, Grandma's two sisters Gaynor and Joan and Gaynor's husband. My cousin Hannah also came. Seeing her urn was a shock, it was huge. We were taken to the spot where my Bampy (her husband) was scattered in 1991. We took turns in scattering her ashes. Once it was over, we all released balloons. It was sad but happy. I think if we remember she's...
Pat went into a nursing home on 28th June. Such were his needs that it was not possible to have him home. I see him every day and we spend quality time together despite the fact that he cannot speak. Many years together make non verbal communication possible.It was a very hard decision for us all.
He now has a new GP from the surgery next door to the home which is 7 miles away. This doctor is prepared to give the Octreotide injections which will save Pat being lugged by ambulance the 19 miles...
Having been diagnosed with advanced prostate cancer at the beginning of March last year at the age of 64, I went through the usual tests of biopsey, ct , mri and bone scans, and was immediatley put onto hormone therapy.( Decapeptyl). I was then asked if I would like to take part in the stampede drug trial. I had a gleason scale of 8 and was told that I had mets to the pelvis.
As my wife and I were in total shock at the time, we agreed as anything that might make this horrible disease go away had...
So I've been to see the oncologist today, very nice lady doctor with a work experience girl in tow !! and she talks about what treatment i'm going to have - and yes it's what i expected 3 rounds of FEC and 3 rounds of Taxotere, then herceptin and lanezole BUT then she said and radiotherapy !!!!!! what !!thats the one treatment Sue the breast care nurse said i wasn't going to have and i have a piece of paper from the MDT meeting that doesn't have radiotherapy ticked as a treatment...
You've just been told you have cancer.The rushing sound you hear isn't running water its your life on fast forward. Then comes the double wammy; you have a cancer noone has heard of let alone come across. There is not a lot of info and what there is is doom and gloom. Rare cancers also act differently in as much as they can transcend 2 or 3 types. In my case treatment is also rare. I was diagnosed 10 years ago and have seen many changes. I've also met many interesting people. You also get...
I posted a few days ago, but no-one has commented or left a message.
I know my form of luekaemia is very rare. And most of the 300 of us with CMML in the UK are male and over 70. Maybe they aren't on this site? I'm 53 and female. I kept my diagnosis to myself for a long time. I didn't see any point in worrying other people when there was nothing to be done.
But I would so love to be able to talk to someone with the same disease - or even someone else. There is currently no treatment...
Good Day!
I rang the breast care nurse today because I was unsure about when to go in with a seroma. She said when it was uncomfortable. I said it's not, but then it may be my perception of how things are going anyway. She said to come up to have a look (I was in town anyway) so I went and she drained 300mls - there is more, but she couldn't find the right pocket and as I am not uncomfortable we left it.
So here come the really good news:
She cheated and looked up my sentinel node biopsy...
TO WAKE UP IN THE MORNING TO BEAUTIFUL SHINING SUN
THAT LOVELY WARM FEELING THAT A NEW DAY HAS BEGUN
WE CAN WAKE UP WITH A SMILE INSTEAD OF FEELING GRAY
IT SOMEHOW SEEMS TO MANAGE TO BRIGHTEN UP OUR DAY
REGUARDLESS OF THE WORRY PEOPLE HAVE LOCKED INSIDE
THEY SOMEHOW SEEM TO SMILE AND ENJOY THE YELLOW SKY
HAPPY AND SMILING FACES CAN BE SEEN FOR MILES AROUND
AS CHILDREN CAN NOW ESCAPE FROM BEING HOUSE BOUND
TO LOOK OUT OF THE WINDOW AND SEE THE CHILDREN PLAY
TO HEAR THEM HAPPY AND GIGGLING SEEMS TO...
