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Today, my son had his last out-patient chemo. In his remaining treatment schedule, he needed to undergo 2 months of weekly out-patient chemo in July and August but this was interrupted when he suffered complications from side effects of chemo. Next week, he'll have in-patient chemo then it'll be every three weeks thereafter. As the countdown to Christmas has started in my country, so have we started the countdown to the end of chemo. We are hopeful that it will be indeed a merry Christmas...
Well its been a while since i've posted because i've been recovering first in hospital and then at home.
My op was Tuesday 15th Sept i was sent down around 9:30 at the Royal Marsden in London where the anethisists checked me out and fitted an epidural with my help, then i woke up 2 hours later minus my tumour.
The two surgeon Barnaby Smith and Professor Thomas removed a 3.6kg dumbell shaped tumour from my pelivs.
Fist day/nite in hospital was constant obs so i had little sleep thereafter...
Well it was great to hear from some of the people from before the site changed. Liz - how are you doing? I know the last post I read from you your tumours hadn't grown since the last scan? Great news.
To save confusion I'll keep the user name deejay - but they are my initials, so call me jeanie, same as before, which is my middle name.
Anyway, hopefully normal service is gradually being resumed, and we can all get up to date with how everyone is.
A sad piece of news - a friend of mine's...
In fact, I'm not sure I am still. But I am a sad, frustrated, Mum of a beautiful 13 yr old with a (Insert your own swear-word here) brain tumour! (Astrocytoma)
At the moment, we are in the situation where my daughter has had x3** ops over the summer holiday - non of which have actually helped her - she has recovered well from them so is fortunate enough to be well enough to go to school and I return to work. However, I find this has left me screaming on the inside. Because she is well and in school...
As the new site seems to have totally screwed up my Forum on Mantle Cell Lymphoma which had a number of people following. I am considering turning it into a Blog, but I am not sure that it will be worth while.
It would be good to hear comments from all the people who posted comments on the original forum to see what they think, as it would be good to stay in touch.
Dave
Hi Be on the lookout for an e-mail from Lady Faith Mabou, Who would like to be your new friend and show you something "good"
These people didn't take long to find our new site,
I have forwarded the email to Thomas and deletet it
Love Teri
It's started coming out today 14 days from the chemo like they said not sure what to do am scared I really don't want to shave it but don't want it coming out in clumps decisions decisions. My head is burning feels like evry pore is on fire.
Can't hide it from the general public anymore, have also got odd little lumps on the reconstructed breast just tiny like little peas will have to ring the breast nurse to see what to do.
good morning everyone ,i have just joined the head and neck group to be with fellow head and neck patients please get in touch with me for chats
well its being two weeks back at work , some people know what to say and some are justed shocked , i keep telling them its just a litttle problem i have , i will get over it and they cant believe my attitude or resilience.. well thats life, chemo not very good keeping me up all night when i have had it done , only two more course`s left then the old box browing trick again that only hurts when they put the tripod up lol catch you all later
Well here we are on day 8, his chemo finished yesterday after 5 days. Still no better he still has diarrhoea and his temp still spiking on a regular basis.
The Consultant now thinks yhat perhaps it may have been the chemothat is causing the high temp so will wait for 24 hours to see if it stays down if not another antibiotic will be added
Still no result on his liver scan
Teri
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