Finding fellow survivors

1 minute read time.

Well it was great to hear from some of the people from before the site changed. Liz - how are you doing? I know the last post I read from you your tumours hadn't grown since the last scan? Great news.

To save confusion I'll keep the user name deejay - but they are my initials,  so call me jeanie, same as before, which is my middle name.

Anyway, hopefully normal service is gradually being resumed, and we can all get up to date with how everyone is.

A sad piece of news - a friend of mine's grandson has a brain tumour - anaplastic ependymoma - very nasty and aggressive. He is 3. He's had 80% of it removed surgically, but they've opted to take him to America for Proton B therapy. There is a website his father has set up called www.friendsoffletcher.com  where there is a diary he has written. For any of you interested, it makes humbling, yet inspirational reading.

A good piece of news - my son is off to Peru on saturday to see his wife's family and have 2 weeks holiday. He 's doing well, feeling fine, and I'm so glad he's going to have a break. He will have a MRI every 6 months or so from now on (no radiation on his nether regions) to check for further tumours.  So we will just have to get used to the agony of waiting for not just one set of results (mine) but two.  Hey Ho.    Jeanie x  

 

Anonymous
  • FormerMember
    FormerMember

    hey jeanie ........ just found you and checkin how you and your son are ........ its all looking smiles better

    my son had successful op too! (hes just waiting for scan now to see whats what) ...but we are all definately in a better place now than we were few months back eh hun? onwards n upwards (literally for your son flying off to peru ! wow !)

    big hugs

    xNx

  • FormerMember
    FormerMember

    Hi Jeanie, glad your son is making such good progress. Hope he enjoys his holiday.

    Sad news about your friend's grandson though.  Same age as my grandson and I don't know how I'd cope with that news.  I hope everything goes well for him.

    Best wishes to you. Hope you are well, Christine xx