A sense of things winding down

1 minute read time.

Today, my son had his last out-patient chemo.  In his remaining treatment schedule, he needed to undergo 2 months of weekly out-patient chemo in July and August but this was interrupted when he suffered complications from side effects of chemo.  Next week, he'll have in-patient chemo then it'll be every three weeks thereafter.  As the countdown to Christmas has started in my country, so have we started the countdown to the end of chemo.  We are hopeful that it will be indeed a merry Christmas.

At this stage in my son's treatment, there is a sense of things winding down.The pace isn't as frenzied or as hectic or as desperate unlike in the months that followed his diagnosis.  I still remember everything about his illness we needed to digest then: when he started chemo and there seemed so much we needed to remember about his home medications, when he needed to be monitored regularly to see if the tumor was shrinking, when he had surgery to finally take out the tumor and his left kidney along with it, when he needed to undergo radiation withhin 10 days after surgery, when he had gone through 5 courses of chemo and still needed 14 more, when his platelet count became dangerously low and he went into liver failure...I was never fond of roller-coaster rides and I hated the unpredictability of this disease.  It had a treacherous nature that robbed us all of our normal lives.

Now, I look forward to the last day of chemo- anticlimactic as it may be...

Anonymous
  • FormerMember
    FormerMember

    just caught up on your last couple of blogs ..... he.s had a bit of a rough ride to say the least .... but good to see things finally improving

    keep up the good work

    love

    xNx

  • FormerMember
    FormerMember

    Thank you for your warm sentiments and encouragement, Normally. I can almost see the light at the end of the tunnel.

    Best regards,

    Rachel

  • FormerMember
    FormerMember

    Hi Rachel,

    Great that you're finding your way around the site! Can you send me a map???

    After nearly 6 months with Claire, I guess we're really wedded to the "One day at a time" message - we all hate the "bad" days, so we're all entitled to enjoy the "good ones".

    So enjoy looking at that light [at the end of the tunnel]. But if it fades a bit, remember it's our job as parents to: light the torch; give it some more strength; and stride towards it.

    Gary

    xxx

    ------------------------------

    "One step at a time"

  • FormerMember
    FormerMember

    Hi Gary,

    My map's no good since it's only now that I found your reply from two weeks ago!

    I always appreciate your gentle reminders and encouragement as only another parent in a similar situation could give.  

    I've read on another thread that Claire is having more good days, like when she sat in her wheelchair for several hours.  May she have more of those, a day at a time.

    Keeping you, Claire, and the rest of your family in my thoughts.

    Rachel