deejay's blog

  • cyberknife fiasco

    FormerMember
    FormerMember

    After being told in Feb this year that one of my tumours had grown again, (I had 6 months of chemo in 2009) I was overjoyed to learn that I may be suitable for cyberknife as it seems that only this tumour is active.   Being under one of the NHS London hospitals that were getting a cyberknife machine this summer, I felt that another 6 mnths of chemo to try and shrink it back down again first, would be worth it if it could be…

  • The loneliness of the rarer cancer sufferer

    FormerMember
    FormerMember

    Well yesterday it was confirmed that one of my liver tumours is active again.  After 18 months or so of being stable (which I'm extremely grateful for by the way) the largest liver lesion has doubled in size since October last year.  None of the smaller ones (liver, lymph nodes, pelvis) have changed.  Just this bigger bugger.   So it seems that I have to have another load of chemo.  Which again, wasn't too bad at all for…

  • kick me when I'm down why don't you?

    FormerMember
    FormerMember

    Well, I had my check-up at hospital on Monday.  This is usually a quick chat, possibly urine test results (hormone levels) and (sometimes, but rarely) blood pressure.  For those of you that know me and my situation, my son and I usually see the Professor together.

    Arrived at hospital at 5pm for 5.15 and 5.30 appts (son doesn't like taking time off work).  BIG mistake.  Like flights, you're better off getting early one…

  • Doctors give me something with one hand - and take it away with the other

    FormerMember
    FormerMember

    When I was a little girl my nan had a saying that went something like - talk about give you something with one hand and then take it away with the other!'

    Well that's exactly how I feel today.  We went to get the results of our scans today - my son's MRI and my CT.    Great news for me - no change at all since my last scan in January.  Only one lesion visible on CT (used to be 3 in liver) and that hasn't grown…

  • confused.com

    FormerMember
    FormerMember

    Well I'd like to offer my opinion on whatever the hell's going on, but I don't have a clue what it's all about, and actually, I don't want to know.

    I first used this site when it was 'what now' - yes, it was good, maybe this one isn't as good, I've never really thought about it - it does the job, doesn't it?  Puts you in touch with people who understand what you're going through…