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Decided to write a blog to try and make sense of the last few years.
Mostly it will be me writing about how difficult I am finding it to get back into a 'normal life' and hopefully we will have a laugh and giggle along the way.
So I think that the appropriate place to start is what my life was like before diagnosis.
I had just spent the last three years living and studying in England, having the absolute time of my life. I made such good friends, one of which I am still in contact with now...
Hi all.
I am sitting in bed eating some posh chocolate and drinking coffee. One of my favourite pastimes.
I haven't much to say to be honest, could be because we are in a kind of limbo but felt an update was overdue.
We have had an eventful week here, the twins have both been in hospital having minor operations on their heads. One planned to deal with an excess skin growth and the other unplanned, I think it was a twin thing, he didn't want to feel left out? So....as much as I had hoped...
In the pit of despair that was last week, the temple of peace at the bottom of my garden seemed as remote as the Himalayas.
Then something odd happened last Sunday. I got up and something felt distinctly different but I couldn't put a finger on it. I had a shower and then it dawned on me; I felt well. Not only was I not in pain, I felt positively perky. Monday came and again, I felt, like me. I felt like me! I hadn't felt like this since last year. It was like waking up after an awfully long vivid...
sounds like an episode of GBBO
at the weekend I lost the majority of hair from under my armpits, they are now smooth, think Nic is now jealous.
Monday Nic goes to work and although I had been slowly thinning during ABVD I was probably at 80% of my usual hair volume. I had very thick hair and it had always been thinned out by the barber so to most people the difference was negligible and no doubt many would not have realised. Anyway take a shower and realise that genuine clumps of hair are coming...
Daniel's journey with Stage 4 Ewings Sarcoma started a little over a year ago (well, that he knew of!) Watching the way he and his partner Evie have dealt with this couldn't fail to amaze and inspire. They are both truly remarkable. They've faced this thing head on, never doubting that he will kick this thing into remission and even retaining their sense of tumour! (Daniel's joke, not mine!)
So I decided to start this blog as a testament do Daniel's sheer tenacity, fierce determination...
2015 has been a year of challenge and tribute. This you feel even more when arriving at the NEC outside Birmingham to compete at the highest level show jumping.
The challenge at the NEC, before any competition is finding out where to go and how to get there. It applies to everything from hotels, restaurants and arenas. The tributes are equal in finding out where to go as well as finding great buys!
48 hours later I'm leaving with a new bag full of new useful stuff! Hm, luckily...
An MRI scan for breast cancer is not the most glamorous event. I had to lie face down with both of my breasts hanging down and out through two holes cut into the bed. There was a drip in my right arm to administer a radioactive dye that will show up the blood vessels in my breasts. The whole idea is to see if there are any other suspicious areas in my left breast, where I already know there is a tumour, plus to see if there is anything in the right breast. Last week, my breast care nurse told me...
Hi. Well, I got through it of course, as we all have to do.
I had to get to the hospital for 7.30am. I got to see the nurse first of all to get my lovely wrist bracelets and super stylish stockings and had blood pressure done. Then got to see the surgeon who I had not met before. The consultant I had seen when I got my results was on holiday. I had re-read my letter and he was not on the breast units staff list, so when I saw the nurse and she asked if I had any questions I asked who he was and found...
Since my last blog post, I started chemo and I'll say the positive thing straight away. I had one day of chemo almost 3 weeks ago, and saw the doctor yesterday. She is very encouraged because my cough/wheezing have almost disappeared at the moment. I got the impression she thinks it's because the chemo is working, which is really good news, but I'm trying not to get my hopes up too much (hard not to!)
I was really nervous before the chemo, I just didn't know what to expect. They put SO...
