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...I start my radiotherapy - into the unknown!!!! - I've read about what will happen etc - but it's still a case of 'oh eck here we go!!!!!' Mind you I am looking forward to spending time being 'a tourist' in London for the 5 week duration of the 'radio'.
Since my last post I've had my second and third chemo sessions.
I was way less nervous after the first one but still apprehensive. Luckily I went into the second one feeling pretty healthy (almost normal), this helped a lot with the side effects. Apparently if you're feeling bad before you start, any pain or discomfort just gets intensified after chemo. Rachel and Nick were both there for my chemo session, and my parents popped in too (I think I had the most visitors in the unit!) I still hate...
So Daniel's on his second of 4 rounds of chemo (hopefully). He'd started to think he was going to get away without losing his hair this time, but apparently no such luck. When he was having chemo before and lost his hair he lovingly nick named himself 'The Egg' and now it seems we're seeing the eggs return.
When Daniel started to lose his hair both times, he's let his 8 year old nephew shave his head for him. It really makes his nephew feel a part of the process and not to be...
Oh...what an eventful couple of days.
I had been thinking lately that I had nothing to say, nothing of interest, nothing that you dear readers would be interested in. I think the Bastard has been listening in to my thoughts. So we can add eavesdropper to the list of undesirable habits it has, alongside squatter, life wrecker etc.
I spent all day Monday at our big city centre posh hospital sitting in Ambulatory Care. What is Ambulatory care? I have no idea, well no idea until during my 9 hour wait...
Evening to you all.
Hopefully you are all spending this All Hallow's Eve doing what you enjoy the most, be it dressing up and partying or turning the lights off and hiding?
We are back after spending a wonderful few days staying in a hotel overlooking Robin Hood's Bay. A beautiful, beautiful place. This came about purely because our friends are amazing people. The view was spectacular and during the four days we were there I spent a fair bit of time staring out across the bay or when the...
For any people reading this I should have pointed out in the first blog entry that the removal of my first testicle was in York under my private medical insurance. However once removed I entered back into the NHS system. Under York's care I had called with a few questions on my recovery and got answers within the day and everything seemed straight forward. The move to Leeds required a level of chasing, patience and more chasing. Something I couldn't get my head around at first. I wanted to...
My 'radio' starts next Friday 6 Nov - I've been reading lots about what to expect and today I met a lady from my local Sarcoma Group - who has been there, done that and got the T-shirt!!!!!! and was able to give me first hand knowledge on what to expect and what questions to ask. We met just for a 'chat and a cuppa' and 3 HOURS later we parted as friends - a remarkable lady.
things have largely been going well. It's cycle 3 and just home injections left. Got clinic on Friday for authorisation to do cycle 4 and should be getting the interim PET scan booked...
this is what been waiting for, seems to have come around quick but at same point still weeks away.
So more of the same... Have felt lucky with way my body has reacted so far to the various chemicals and my near hermit existence has paid off so far in terms of stay healthy. Although the occasional risk is needed...
When I was little my Father used to take me to piano recitals. At the time I took it all in my stride but now he's gone, I miss them and wish I'd thanked him more for introducing me to my stopcock. When I need to vent fury, and sometimes I really do, it's music that I use to drown out my thoughts.
Playing mostly classical pieces on the piano and harp, there's not much chance of really thrashing either instrument without causing expensive damage, or injuring my hands. Prokofiev is okay...
In May 2015 I was diagnosed with the AML form of leukemia. I had no symptoms, apart from a headache. As a result, ans without any notice, I then spent most of the next 5 months in Basingstoke hospital, mostly in an isolation room due to my neutropenic state.
During my stay, mainly to keep my sanity while in isolation, I kept a daily blog on my own existing blog website. Almost every day I wrote about my AML experiences of 3 consecutive intensive chemotherapy courses.
I almost lost my battle ending...
