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I was diagnosed with breast cancer 14.11.22 & am now coming to the end of active treatment. Unfortunately I now have to face treatment for NET which were found by mistake when the hospital did a CT scan in the wrong place. I was told at the end of November...
Hello. I'm new here and this is my first post. For the last two years I've been having issues with hormones and gyne. I was hospitalised 3 times with suspected endometriosis, then adenomyosis and following that. I was told i also had ulcerative colitis...
Hello, Sadly, my mum has just been diagnosed with Net Cancer. She has a mass of tumours on her liver. Scans, blood tests, urine and biopsy can pin point the source of the cancer. Surgery hasn’t been offered. She will start chemotherapy in a couple of...
Hello. My Mum has recently been diagnosed with a neuroendocrine tumour in her jejunum, spread to the liver. My Dad passed away in January - this has all come as a bit of a shock. Mum is 82 and has always been fit and well. She has just seen a nurse...
I'm joining this group following a diagnosis of a NET in my right lung. My diagnosis came as a shock as the tumor was discovered following an ultrasound scan for possible gallstones. I'm now recovering following a lobectomy via VATS surgery. I would like...
Hi, I'm a 36 year old male who recently got an initial diagnosis of Carconoid Tumour in the main tract of my left lung. I'm going for a specialist appointment on Sunday as the initial diagnosis was after routine medical screening for my new job...
I’ve had some investigations after a positive FIT test. I had a normal colonoscopy but I’ve steadily become more unwell. At my last appointment, the consultant asked me to do a 5HIAA test as I said I’ve been getting hot flushes, night sweats, nausea,...
Hello, My husband has just been diagnosed with pancreatic neuroendicrine cancer stage 1 3 x weeks ago aged 61. He thought he had flu over Xmas and was poorly in bed throughout Xmas n New Year. Otherwise he has never been I'll and was fit and healthy...
Hi I’ve just joined today. my mum was diagnosed with liver tumour e of of October but was told that was the secondary cancer and they needed to find the primary, at beginning of December I had a phone call to there was a surgeon in London who could...
Hi, has anyone suffered from any stomach pain as soon as the Capecitabine hits their stomach? I am 5 years since diagnosis so in a very different place to where I was in 2018 when I gad the same chemo tablets. The Temozolomide makes me sick but I don...
