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Is anyone taking this drug for their cancer?
Hello, new to this forum. My husband has a lung carcinoid, NET. It wasn’t found until stage 4 and had already metastasised to the liver and bones. He is on Everolimus daily. His worst side affect is edema and no treatment for that seems to work. Does...
Hi No primary found guess small bowel but lymph and liver affected. Found in July 22 stage 2 put on octreotide injections. I have no flushing or diaorrha problems bowel movements 2-3 times per day taking laxidose sachet daily. Over last few years been...
Hello all! In April 2022 I had a transanal endoscopic resection of the rectum to remove a suspected cancerous polyp. Biopsy diagnosed in June, 2022 as an aggressive high grade small cell endocrine carcinoma. MRI, CT and PET scans showed possible metastasis...
Hi I am wondering what peoples experience is following no evidence of disease found - following diagnosis of stage 4 neuroendocrine cancer previously I was told I was cancer free as stage 3 tumours removed with good margins only to shortly be diagnosed...
Hi newly diagnosed NET on my liver following biopsy, it suggested that primary cause stemmed from my lungs but further no lesions found on my lungs. Currently waiting for full PET scan see if they can determine primary source. Tried so hard to enjoy...
Hello dear All i want to get sone more idea from this group. I have had an operation last year 14.07.21 as symptom of Carcinoid tumour of small bowel (pT4 N1, G1 Ki67 <2%, R0, 8 of 20 lymph nodes involved by cancer. And they removed about 0.90 cm from...
Hi all Anyone on here have the above And can anyone tell me about it please I have pancreatic cancer Stage 3 Neurocidine net 3 I have been told I am awaiting my chemo Any info wil be greatly appreciated Thanks
Firstly, I would say that I'm not good at this. I usually tend to read posts trying to find comparisons and some reassurance with my own journey with NETs, but here goes. The one thing that I have noticed is that although there are similarities, everyone...
Hi Everyone…. I’m new to this group and if like to share my journey so far with you… July 27th 2022 I've just been diagnosed with a carcinoid tumor in my left lung,it's caused me to have multiple bouts of pneumonia...bronchoscopy performed to...
