I have been told today I have a 38mm NET tumour which has spread to surrounding lymph nodes and to four places in liver. This was an incidental finding and I’m so shocked as I don’t have any symptoms and feel fine. I’m being transferred from the hospital...
Hi all, my latest drama while still waiting for surgery. I had the dota scan on 30th july, so am waiting for pre-op then surgery. I have now been told the specialist centre in Birmingham want me to have an mri on my liver and a ultrasound scan on my thyroid...
Hi all, after just under 6 months, i am finally getting my surgery. My MRI was rushed through, which i had last monday. On thursday, i had a phone call to book my pre-op. I had that on friday. Was amazed how thorough they were. I came home with bodywash...
I had lobectomy to remove nurendocrine carcinoid Tumour removed last September. Surgery was successful. But Im always sweating . I can be sitting then all of a sudden im soaking. Anyone else have this problem?
Hi, Just wondering if anyone is out there that could help me? or may be or have been in a similar position. I was diagnosed with a duodenal NET in December 2017. Since then I had Whipple surgery and the tumour removed successfully. My malignant tumour...
Hi, I'm 2 weeks into taking lenvatinib alongside 3 weekly pembrolizumab infusions, I was wondering whether anyone else has been on these drugs and how long side effects lasted? I've had high blood pressure, headaches, fatigue and muscle and joint pain...
Hello not sure if I am in the right forum.im under investigation for adrenal cortisol carcinoma having found a 5cm tumor on my adrenal gland,just got an appointment to see the surgeon next week haven't been told I have cancer yet but they have rushed...
Does anyone else suffer with extereme tiredness
Hi all, I’m new to this forum. I was diagnosed in July 2024 with NET tumours in my lungs and later in the year found another in my pancreas. I have had good medical support and two weeks ago had treatment on the tumour on my left long and will be having...
Hi all So I've been unwell with chest pain since December finally had an xray in Feb then various scans etc to now be waiting for surgery to remove what they now believe is a lung carcinoid. All the way along the consultant was confident it was at...
